Breast Cancer Care

Here for anyone affected by breast cancer

Home > Community > Forums > Treatment & side effects > Undergoing treatment: targeted therapies

Breast cancer & breast health

Forum: Undergoing treatment: targeted therapies

Post a new topic

1 2 3 4 5 ... 14 Next

Herceptin side effects ( quick poll)

Hi On another site I found a really useful, but incredibly long thread of side effects from women on herceptin. It makes me laugh when onc's say it has ' no' or 'v mild ' side effects. It is nowhere near as bad as chemo, but in our paranoid world a qui...

Posted by Midge on Wed Aug 03, 2011 11:45 am with 83 comments

Latest comment

My results have been improving the further away from chemo I get, I had FEC and the Epirubicin can affect the heart too, so I'm lucky that those side-effects are wearing off and the Herceptin doesn't seem to be affecting my heart. Another worry off the...

ChoccieMuffin, Thu Feb 09, 2012 11:46 pm
flushes

Hi had first Herceptin yesterday and first Tax Tuesday. I have had the most awful hot sweats and stomach cramps- any good coping techniques?? I'm sure they will get better soon. Thanks

Posted by 1234 on Fri Feb 03, 2012 7:54 pm with 3 comments

Latest comment

Hi 1234, I didn't have Herceptin but did have Tax. I started FEC last January and had one more period after that, then they stopped. I had my first hot flush in the evening after my first dose of Tax last March and they've continued ever since. I sta...

Alto, Sat Feb 04, 2012 12:06 am
Weight loss after Herceptin finishes

Just wondering if there is anyone out there who found that they gained weight when taking Herceptin, but has managed to lose it once finished. I am having the last of my 12 month Herceptin next week and was ok to start with but over the last 3-4 sessi...

Posted by SamLee on Wed Feb 01, 2012 10:55 am with 13 comments

Latest comment

Hi drsfelix Thats the sort of message I like to see. I am hoping that because I am doing my Slimming World to the letter, 3 times gym and spin classes now, that over the next few months the weight will go in the right direction, once I have less drug...

SamLee, Fri Feb 03, 2012 11:04 am
Herceptin

Just had my 4th cycle of Herceptin. I feel like a real hypochondriac. I ache from head to toe, I can hardly walk when I first get up in the morning or after sitting for a while. I am breathless and wheeze like an old steam train, I have bouts of dia...

Posted by aramis12 on Mon Jan 23, 2012 5:48 pm with 8 comments

Latest comment

Hi Aramis I have had 3 Herceptin no 4 on 7th feb. I have had the Wheezing, short of breath. I went to chemo unit who said to go to docs and get an inhailer like the asthma one so i did and that seamed to help, when having my check with onc while havin...

silverjill6666, Tue Jan 24, 2012 11:48 am
NEW TRIAL DRUG ALONG SIDE HERCEPTIN

HI I have been invited to go on a trial with a new drug called Pertuzumab which is given along side Herceptin. I won't know if I get the drug or a placebo. I'm a little tempted as they monitor you more closely. Has anyone else been invited on this tri...

Posted by scotianne on Thu Dec 22, 2011 7:44 pm with 4 comments

Latest comment

Hi All, I, like Yvonne, will be going on the REACT celecoxib or placebo trial in the next few weeks. I'm not on herceptin though. The thought that the medics keep their on you for a little longer and if it helps someone else, it will be worth it. Axx

AnnieK68, Wed Jan 18, 2012 9:51 pm
Fatigue after Chemo

Hi I would love to hear from any of you who have felt like me at the moment. Ive had a right side mastectomy in May followed by 7 months of chemo including taxotere. I was also neutrapenic 6 weeks ago and needed the immune boosting tummy jabs. Ive st...

Posted by EB on Sun Jan 08, 2012 11:19 pm with 4 comments

Latest comment

Hi, I finished Chemo and Herceptin over a year ago, and only now have I stopped aching and feeling shattered. Taxotere takes a while to work its way out of the body, my GP and Onc, say it can take up to two years, so hang on in there. It does get better.

skicharlie, Thu Jan 12, 2012 9:36 pm
Back to normal after Herceptin

Am posting this as have not seem many posts from ladies who have finished Herceptin. I have 3 left of my 18 sessions and am wondering how long after I should start to have more energy and less tired and feel more like me. I haven't had too many side ...

Posted by SamLee on Tue Jan 03, 2012 1:10 pm with 8 comments

Latest comment

Another runny nose, here, too! I'm half-way through and finished rads two weeks ago and I seem to get tireder and tireder.

Ninja, Tue Jan 03, 2012 8:27 pm
Herceptin and colds

Does anyone know if they will delay my Herceptin because of a cold please? I have come down with a stinking cold today but am due my 9th Hrceptin on Wednesday and really dont want it delayed. Anybody got any experience of this please?

Posted by Jo C on Mon Jan 02, 2012 9:18 pm with 8 comments

Latest comment

Well I saw my nurse this morning for my blood test and mentioned it but she said that unless my bloods were very bad it would go ahead. However I do feel much better today and haven't had to sit with a tissue up my nose as I was yesterday so all is loo...

Jo C, Tue Jan 03, 2012 6:18 pm
had herceptin stopped

hi everyone, first time i am posting, although i have been reading all the posts daily. i have ibc, had chemo,mx on the 25 nov plus full node clearance. 4 infected.was told i was her2 positive, so started herceptin. have had 4. now my oncologist has to...

Posted by ginette65 on Mon Dec 26, 2011 6:26 pm with 1 comments

Latest comment

Ginette, HER status is different to hormone status. I am 100% positive for oestrogen(ER) and progesterone(PR) hormones but HER- so herceptin wouldn't be appropriate for me. You must be ER+ to some degree for your onc to advise arimidex. Your patholog...

lizcat, Mon Dec 26, 2011 7:01 pm
Skin problems and Herceptin

I don't know whether anyone else is affected in a similar way but I am on Herceptin and Tamoxifen post chemo and my skin seems to be falling to bits. I have little blisters which are a bit itchy and sore on my toes and fingers, I seem to cut very easil...

Posted by JaneEB on Wed Nov 23, 2011 6:57 pm with 2 comments

Latest comment

Hi Jane & Mo I have simular issues with my skin an nails although I finished herceptin early November. This has only really developed within the last 3 weeks. My hand nails have always been good an strong but they have taken to spliting if I dont keep ...

technician, Fri Dec 16, 2011 8:16 pm
Herceptin Trial

I've been asked if I wanted to join the ongoing trial for Herceptin, I know it's not like the Import Trial I did with Radio & that the only difference will be I'll have it for 6 months instead of 12. I was wondering if anyone has done this (as it st...

Posted by Minimunchkins on Sun Sep 11, 2011 4:54 pm with 10 comments

Latest comment

Hi all, Ceebee - I had a similar diagnosis to you in July (Grade 3 5cm tumours) but I'm not HER2 positive, so no Herceptin for me. However, I had chemo first and am having a mastectomy on 16th Dec followed by rads in January. However, they told me t...

Blondebutbrainy, Fri Dec 02, 2011 3:18 pm
Stopping herceptin after 5

Hi all After discussions with my oncologist I have made the decision to stop herceptin after five sessions. This is numerous reasons: firstly, they wanted to give me a hickman line as my veins are shot and it was agony trying repeatedly to get a vei...

Posted by carriemitch on Wed Sep 10, 2008 5:02 pm with 8 comments

Latest comment

went for my three weekly Iv herceptin Wednesday and because i'm coughing and my MUGGA was V low the out reach oncology nurse rang the hospital onc unit to get me a xray and an appointment to see my oncologist the day after . He informed me that my xray...

susan_m, Fri Nov 25, 2011 2:37 am
herceptin and recurrence.

I was just wondering how many people have had herceptin and had a recurrence and at what stage ie during herceptin or after it has finished. I wish they would hurry up with the results.

Posted by hatty on Thu Mar 03, 2011 4:09 pm with 42 comments

Latest comment

hello hatty, i had a reccurance in my reconstruction side, in sept they removed four nodules, which some cancer left from original dx, i have three more herceptin left but its been stopped because of heart, got to go to see the cardioligist.

lollypop59, Thu Nov 24, 2011 3:33 pm
Herceptin and heart % to stop treatment

Hi all had my echo scan today and my LF has dropped from 65% to 59% the chemo ward are asking the doc if Herceptin can go ahead as planned as the cut off % is 53% has anyone else been in this position or had it stopped and then started again?

Posted by hatty on Fri Jul 01, 2011 1:32 pm with 21 comments

Latest comment

hi hatty, i have just been reading about your muga scan results and stopping hereceptin, i had three left to go but the herceptin have been stopped because of the same problem, because my herceptin is nearly finished it is not going to make much ...

lollypop59, Tue Nov 22, 2011 7:54 pm
Finished herceptin

Hooray Just had to post and say I've finished Herceptin (18).No more 3 week cycles of hospital appointments and all that it entails. Have had a few little probs , mostly with chemo veins, but my heart stats have been good throughout and no noticable s....

Posted by technician on Thu Nov 03, 2011 9:18 pm with 7 comments

Latest comment

I have 2 left....cannot wait...its a long old way....xx

lostinfrance, Tue Nov 22, 2011 7:21 pm
Radio Frequency Ablation RFA

Hi Thought id start a new post, as there doesnt seem to be much info on this and only see a couple of mentions about RFA. After 3 years of trying to get RFA ive managed to get it, to my liver tumours (3 no.) only had it last monday so still early d...

Posted by Zippy on Mon May 31, 2010 12:58 pm with 16 comments

Latest comment

Hi Ladies, So can this RFA treat lung mets as well?? only I have mets on both lungs at dx it was multiple and now they have told me that after chemo and surgery the lump in my breast gone and lymph nodes gone, now the lung mets are classed as tiny and...

sarahlousie, Mon Nov 21, 2011 5:36 pm
what drugs were you given before the loading dose?

hi there, if you are about to start herceptin or can remember, can you tell me please what pre injection drugs were administered before your loading dose (the first one where you have to spend 6 hours in hospital) e.g. steroids, paracetamol, anti sick...

Posted by Poppyetta on Tue Nov 08, 2011 3:57 pm with 3 comments

Latest comment

I had anti-sickness and piriton which made me conk out. I felt fine - it was just a bit boring waiting to see if there was going to be a reaction.

Sandytoes, Tue Nov 08, 2011 4:58 pm
Portacath removal

I am due to have my portacath taken out on the 26th of this month. Anyone had one taken out? Marian

Posted by Marian101 on Sat Oct 15, 2011 2:47 pm with 6 comments

Latest comment

I had mine out two weeks ago, no sedation unlike when it was put in, but the local anasthetic ensured no pain. It was fine, very routine, I drove myself to the hospital and home again. The scar was a little sore for a week or so but will be hardly noti...

gillygeorge, Thu Oct 20, 2011 9:15 pm
Herceptin side effects

Hello! I'm new on here today so please forgive me if this topic is already being debated (And if it is, maybe someone could tell me how to link to it!) but I would like to talk about herceptin. I had six cycles of chemotherapy (finished March 2011) and...

Posted by MollyMollingtons on Thu Oct 20, 2011 1:06 pm with 5 comments

Latest comment

Hi there As the others have said there are those who manage Herceptin with minimal side effects and others who have several. I have had 15 of 18 and have managed so far. However, I do have an allergic type reaction for about a week after each infusion...

jaynek, Thu Oct 20, 2011 7:59 pm
Drug Combo Might Fight Aggressive Breast Cancer More Safely

I thought you may be interested in the latest HER 2 report. Staywell Custom Communications Last updated: October 06, 2011 WEDNESDAY, Oct. 5 (HealthDay News) -- Treating women with an aggressive form of early stage breast cancer using Herceptin and c...

Posted by hatty on Wed Oct 12, 2011 3:09 pm with 5 comments

Latest comment

Lets all have big hopes. This is the link to the cancer HER 2 cure post. http://her2support.org/vbulletin/showthread.php?t=51465

hatty, Thu Oct 13, 2011 9:33 am
Herceptin at home

I start my chemo on 16th sept after my holibobs, and herceptin the day before on the 15th. I will be having my Herceptin at the hospital with my chemo, but once thats finished I will be having something which is called Herceptin at home, which I belie...

Posted by stargazerlily on Mon Aug 01, 2011 11:02 pm with 16 comments

Latest comment

Hi ladies, Might be a bit late to add to this thread but my chemo nurses have just mentioned that I would qualify to get my herceptin administered at home, I was given the impression that this was a totally new thing!! Obviously not. I have agreed tha...

sarahlousie, Sat Sep 10, 2011 10:12 am
Herceptin - Weight Gain Anyone!!!!!

Hello Are there any HER2 ladies out there who are struggling to loose weight!! I started herceptin in Jan this year and have just had number 11 of 18. Last year I had chemo, mastectomy and then rads. For the last couple of months I have been eating h...

Posted by Fluffy Chick on Sun Aug 14, 2011 6:20 pm with 12 comments

Latest comment

Hi, Just shows how different we all are. I am trying hard to put weight back on after chemo and herceptin. E

emmbee, Wed Aug 31, 2011 4:50 pm
Migraines

Hi Everyone I wonder if any Herceptin ladies are suffering from bouts of migraine, i have had 5 herceptins and due for no 6 tomoro, have noticed that i am having migraines, have never suffered from them before, it always seems to be triggered off by c...

Posted by hollingtons01 on Tue Aug 23, 2011 8:10 pm with 4 comments

Latest comment

hi shirley thanks for your post, glad to hear its not just me, i did mention it to the staff nurse today and she looked at me as if i was goin to the moon, am really tired all the time too, it just not fair! ...moan over good luck to you too debs

hollingtons01, Wed Aug 24, 2011 8:06 pm
HER2 Negative

This may be a daft question but i just got my results today & at my previous appt my consultant talked about Herceptin so i thought i must be HER2+. Today they told me im HER2 negative. Is this a good thing or a bad thing as i don't really know anythin...

Posted by hjv123 on Thu Aug 18, 2011 10:22 pm with 4 comments

Latest comment

ah right, well im happy that it's good news to be negative & im also happy that Herceptin is available to zap the blighters when u are HER2 positive. SGL i can remember u saying u needed chemo etc & u were devastated, i guess thankfully Herception is a...

hjv123, Fri Aug 19, 2011 9:44 am
cyberknife in lungs

Hi just wondered if anyone as had cyberknife to lungs with any success hoping to be considered for this just wondered if anyone else had startewd yet many thanks laura xx

Posted by laura64 on Thu Aug 11, 2011 6:30 pm with 1 comments

Latest comment

Laura, there has been a lot of research done on the effectiveness of cyberknife for lung mets, and the National Radiotherapy Implementation Group (which is a Government Advisory Group, and provides expert advise to NICE on radiotherapy issues), has sa...

Lemongrove, Thu Aug 11, 2011 9:02 pm

1 2 3 4 5 ... 14 Next

Registered charity number 1017658 | Breast Cancer Care Helpline: 0808 800 6000

Here for anyone affected by breast cancer

Categories

Forum: Undergoing treatment: targeted therapies