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Top tips to help get you through Chemotherapy

Posted by Jo BCC on Mon Oct 27, 2008 8:33 am with 501 comments

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Bump

Cackles, Mon Feb 06, 2012 9:42 am
Starting chemo in February 2012

Hi:) I'm starting my chemo on 2nd February so I thought I'd open a thread for us Feb starters :) I'm having FEC x3 and Tax x3 followed by rads. I'm going to try the cold cap but have been looking at wigs just in case. Some look great and some look lik...

Posted by Giddy on Mon Jan 23, 2012 8:16 pm with 207 comments

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Hi all Just calling in. Now 8 days since first chemo. Now short haircut,got NHS wig and had it cut. On Friday buying human hair wig from Trendco wigs in London and having hair shaved on Mon 20th Feb ( day 18)...... thats if my hair has not fallen out b...

Esha Ness, Sat Feb 11, 2012 11:51 pm
Starting Chemo in Nov 2011

Hi Ladies Any of you ladies out there starting chemo in Nov that would like to share this journey with me. I'm having 3 x FEC + 3 x Tax and Herceptin followed by 3/4 weeks of Rads and 5 years of Tamoxifen. Got my pre-assessment on Fri and getting a ...

Posted by Lost 4 Words on Wed Oct 19, 2011 9:24 am with 2466 comments

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Evening All Well so far so good :-) s-d hasn't been I'll since late morning, dosed her up with Imodium and plenty of fluids so hopefully it's just a 24hr bug. No sadly Audrey OH was at work and I didn't want to leave it till he got home. I took all th...

Lost 4 Words, Sat Feb 11, 2012 11:48 pm
advice on where to buy hats and scarves

Hello Ladies, I'm hoping someone will come back to me about this. I'm starting on tuesday with the chemo and I've seen some beanies but not actually bought anything yet. I think i like bandanas or scarves but not got lots of extra cash. So if you hav...

Posted by Leeds39 on Sat Feb 11, 2012 11:16 pm with 4 comments

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For inexpensive, funky hats try http://www.hats4heads.co.uk/ Dx

DJ007, Sat Feb 11, 2012 11:34 pm
starting chemo in January 2012

Hi everyone, possibly a bit early to be posting this but thought I would start a thread for those of us starting chemo in January. I had WLE in November and will be having some further surgery on 21st December as the margins weren't clear. I'm meeting...

Posted by happyhunter on Sun Dec 11, 2011 7:02 pm with 953 comments

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Joyce, are you talking about Neulasta injections? If so your oh should be able to do it for you - or you could do it yourself. Its done in the same way that diabetics inject insulin, ie you find an inch of fat (if you can lol) in your stomach area (n...

samos, Sat Feb 11, 2012 11:25 pm
Starting chemo in December 2011

Hi all, I had joined in the November thread as I was hoping to be starting chemo this month, but I'm now starting on Dec 16th so I thought I would start a new thread for us December girls. I'll be having 4x TC and I'm undergoing treatment in my home ...

Posted by TraceyW1972 on Mon Nov 21, 2011 11:02 pm with 628 comments

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For those that are considering this weekend’s dine offer, I can report that so far the valentines meal is proving to be well worth it. We had the coquilles st Jaques for supper this evening and shared the chocolates, they were scrummy. Tomorrow we’ll b...

grace21, Sat Feb 11, 2012 10:49 pm
working rules on working tax credit

hi im unsure if im allowed to put this but how many of you have seen the news today cutting working tax credit and making us work more hrs im gona loose loads cos of the new rules we have worked for yrs paid tax and ni then cos of cancer we get esa but...

Posted by laura64 on Sat Feb 11, 2012 2:20 pm with 4 comments

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I know its difficult particulary at this time but I work 37 hours a week live on my own and only earn £12,500 and I can not claim anything Its even difficult to pay the cost of travelling to hospital

Kellc, Sat Feb 11, 2012 8:06 pm
STARTING CHEMO IN AUGUST

Hi to everyone out there would like to be in touch with any ladies (especially "golden oldies" I am 70 in August) would be nice to be in touch as we go through the chemo together.

Posted by poodlepatch on Thu Jul 21, 2011 10:22 pm with 2968 comments

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Mavis - so sorry to read that you are having such horrible problems. I have only had 4 zappings and am worried about my skin. I put on the aqueous cream but don't like the feel of it. I also put on Aloe Vera gel but find it makes my clothes stick to...

supertrouper, Sat Feb 11, 2012 7:38 pm
starting my pink road of cemo, 15th nov

hey fello pinkies starting 6x FEC on 15th nov, n would like to hear from anyone thats starting around the same. kaz xx

Posted by poppy333 on Sun Oct 31, 2010 11:21 pm with 5629 comments

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Just idly wondering what we were all doing a year ago (page 336). A lot were injecting themselves / getting husbands to do it. Kaz needed springing from hospital and some others had been into hospital and come out again. Now we're back to supposedly n...

Nottsgal, Sat Feb 11, 2012 1:33 pm
Starting Chemo in October

Thought I would start a new topic for anyone starting their Chemotherapy treatment in October. I was just told today I am starting mine on Friday 30th September, so I consider myself an October lady (not sure about the description of Lady though!). F...

Posted by dizzycloud on Thu Sep 22, 2011 4:14 pm with 876 comments

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Well done Lulu on finishing chemo. I'm struggling at the moment, probably did too much this week, and now have gone down with a cold (thank you dd and dh) - have finished GCSF injections now, so just hoping it will be OK, but it does rather seem to ha...

keepthefaith, Sat Feb 11, 2012 1:31 pm
Need positive posts about TAX

Okay - I have just finished 4 x EC and coped okay - only ended up in hospital once with newts of 0.01. All finger and toe nails intact. Only hairs remaining on me are on my forearms. I start on Tax on the 21st of September - and after reading other p...

Posted by supertrouper on Wed Sep 14, 2011 11:11 pm with 618 comments

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That was the good thing about Tax I felt. Although I really felt awful for the first week, after that I felt much much better and almost felt back to normal until the next one. Jan x

Blondebutbrainy, Sat Feb 11, 2012 11:02 am
Starting chemo in May 2011

Hi I thought I'd start this thread for everyone starting chemo in May. I'm having 3 FEC and 3 TAX starting on 5th May. It would be lovely to have some BC buddies to get through it with. I'm very scared at the moment, not about the actual treatment o...

Posted by harp1970 on Mon May 02, 2011 5:52 pm with 2707 comments

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Chris, Sorry to hear about the rheumatism in your knee and other joints but a big woohoo! for the clear bone scan. Good news about your daughter, too. You should make a fuss at the GP's to get a referal to an orthopaedic surgeon for assessment. Even i...

cherryorchard, Sat Feb 11, 2012 10:14 am
Starting chemo in September

I am starting Chemo on the 16th September, with herceptin the day before. If anyone else is starting this at this time too, feel free to come and say hi and we can all moan together! SGL xx

Posted by stargazerlily on Fri Aug 12, 2011 12:00 pm with 1590 comments

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Hi all, I hope you are feeling better jay. Whoop whoop, I have that start of eyebrows and eyelashes! I was able to put mascara on my bottom lash stumps today, yippee! Sarah, my unwanted body hair came back as soon as chemo ended, head hair is doing w...

bigbirdkate, Fri Feb 10, 2012 10:34 pm
Guide to surviving FEC-T

Hi Started my fight against cancer with an MX ( no recon) and ran a thread following my progress. With that behind me now and chemo shortly to commence I thought I would do a new thread following my chemo journey to try and take away fear of the unkno...

Posted by Twinky68 on Fri Feb 10, 2012 8:05 pm with 8 comments

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Hi there Twinky I had 3 FEC followed by 3 Docetaxel and had a portacath fitted as I am herceptin for a year - FEC made my veins pack up so wish we were fitted with them as a matter of course. My portacath has been fitted on the NHS, but it can not a...

Mazzalou, Fri Feb 10, 2012 10:20 pm
Xeloda

Hi all just started on xeloda though I'd see if anyone new was starting so we can share the journey I know there is already a thread but don't get used often

Posted by laura64 on Sun Jan 15, 2012 2:46 pm with 50 comments

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Hi Elaine I'm happy to chat to u I've sent u a pm hi to everyone else tc Laura x

laura64, Wed Feb 08, 2012 8:18 pm
Starting Taxotere chemo in Feb 12.

Hi there! I was dx 4 and a half years ago at age 35 with invasive BC. I had WLE, axillary clearance, chemo (FEC), radio, herceptin and (the dreaded!) tamoxifen. I have since had another beautiful baby (already have a 6 and 7 year old!)(there is hope -...

Posted by Nicolette on Tue Jan 31, 2012 2:03 am with 4 comments

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Thanks Anne, Ginless and Filosofie! I will follow up that Tax thread. Good luck to all you lovely ladies on your journies, too! Nicolette xxxx.

Nicolette, Wed Feb 08, 2012 11:55 am
Dentist work On chemo any advice

Hi I've been for a check up and unf have to have a fair bit of work done owing to chemo and saliva probs my dentist are being a pain I need anti b plus I'm only allowed to have the small fillings done but he as ignored that and wants to proceed so I ra...

Posted by laura64 on Tue Feb 07, 2012 10:57 pm with 3 comments

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Hi, I had 3 fillings done and a lengthy root canal cleansing (think that's what they call it), which lasted several months due to complications. It was a bit of a nightmare. All done during different chemos and zometa (the must be careful for any dent...

m1yu, Wed Feb 08, 2012 12:14 am
Nail Damage!!!

Hi Has anyone else experienced nail infections and damage due to chemotherapy? I've been on Tax (docetaxel) x3 and am on FEC at moment. I've had peripheral neuropathy and now suffered with lie green painful nails and fingers that needed minor surgery ...

Posted by Kiwi coxy on Sat Jan 28, 2012 10:33 pm with 9 comments

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Aww cackles That cuddle was gratefully received, thanks for that! I went to hospital for last cycle of chemo yesterday to be told they couldn't give me due to nail infection! I went from begging her to give it me, to denying my oncologist the thornton...

Kiwi coxy, Tue Feb 07, 2012 5:40 pm
abdo cramps/bloating on Tax

Hello, Not doing too good here :-( Had first tax a week ago and herceptin 5 days ago. Called my team yesterday as really having awful stomach cramps and bloating as soon as I eat or drink. They seemed to think it was constipation however have had the ...

Posted by 1234 on Tue Feb 07, 2012 2:32 pm with 1 comments

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Hi 1234. Sorry that you have had this too. I found on Tax that on about day 6 I had exactly the same thing which lasted a day or two then resolved. It happened with each cycle and was really painful at the time, didn't seem so bad once I knew what ...

southernlucy, Tue Feb 07, 2012 2:37 pm
Heart, docetaxel and herceptin

I have had 3 EC followed by 2 Tax + Her (last Tax day after tomorrow). Amongst plenty of SEs, the one which is most frightening and is getting worse is that after treatment my heart beats much more strongly and quickly, and has lots of palpitations. ...

Posted by tired1 on Mon Feb 06, 2012 11:00 am with 3 comments

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/bHello Tired1, have just read your blog re heart palpitations; I too had Herceptin for a year and all the regular heart checks to make sure all was well, which it was. That was in 2009, then, by coincidence I mentioned my chest pain/breathlessness to...

nutcracker, Mon Feb 06, 2012 4:12 pm
Cold cap - I didn't lose my hair

Hi ladies, I just wanted to share with you something I picked up from someones post on the McMillan forum about cold cap that I've tried and it's worked for me. We all know there are no guarantees with the cold cap working but if this even works for...

Posted by caroline.m on Sun Oct 16, 2011 8:44 pm with 149 comments

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I only started using it after my 5th chemo because that was when I found out about it. I washed my hair daily after I had my hair cut short (just before 3rd) because by then my hair had stopped falling out so I could've used it earlier if I'd known ab...

caroline.m, Mon Feb 06, 2012 2:02 pm
Cold Cap - does it work?

I was only dx last Friday and having my op this Monday 6th Feb but been told will then be having chemo followed by radiotherapy - the nurse mentioned cold cap, has anyone tried this and does it work or should I just get used to the idea of losing my ha...

Posted by Knoxybabes on Thu Feb 02, 2012 9:34 am with 11 comments

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Scottie I'm on 6x tax and carbo..... Carbo doesn't cause hairloss but Im still almost bald.... The tax has caused me lose all, my under arm, nose and leg hairs, most of my LG and head... Probably about 90%.... Sorry to be the bearer of bad news. Lxxx

Lulu34, Mon Feb 06, 2012 3:06 am
Starting chemo in June

Hello all! As there are forums for girlies starting chemo in the months gone by, I thought I would start one for June. Anyone else out there starting soon? I'm either starting next week or the week after. Am terrified - but just want to get started -...

Posted by Sandytoes on Fri May 27, 2011 12:59 pm with 1353 comments

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Hi All, Sandytoes, sorry to hear about your sister, hope all is well and she gets her results soon to relieve all the worry. Relax and enjoy your holiday, you deserve a rest My bone Scan for ostioperosis was ok some issues but don't think I will nee...

BerthaB, Sun Feb 05, 2012 9:54 pm
FEC 75 AND HAIR LOSS

I had my first chemo last Tuesday 22nd April, had minor side-effects, much less than I expected, but my hair still here! When exactly does it start to fall off? I am getting quite anxious. Now that I know it is going, I want it to go as soon as and fin...

Posted by stylish on Thu May 01, 2008 4:45 pm with 15 comments

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Shaved my head a few days ago, I had the cold cap for my first session but by day 16 it was starting to fall out, I had long hair, I was loosing it all over for 2 weeks and couldn't cope with that anymore, so off it came, I wear headwraps now, there ni...

Fullvous, Sun Feb 05, 2012 6:57 pm
tax/herceptin

Hello, Had first Tax Tuesday and first herceptin Thursday. Have already had 3 EC. Having really hoT sweats and abdo cramps along with ususal chemo aches BUT which is causing the problem or is it the combination. How long do they last? At least I don't ...

Posted by 1234 on Fri Feb 03, 2012 7:57 pm with 4 comments

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I had the most awful abdo cramps with tax - almost like giving birth!Only lasted a day ot 2 though. No side effects at all from Herceptin. I would say deffo from the tax!

moser, Sat Feb 04, 2012 5:56 pm
Denosumab trial

Hi all, At my oncology appointment today, I was offered a trial that is running using denosumab, just wondering if any one else is on this and whether you have any side effects? Herbi x

Posted by herbidacious1 on Sat Jan 14, 2012 12:20 am with 12 comments

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Hi All Had my second Denosumab (or placebo) injection yesterday with 2nd FEC. Bone scan and CT scan were both normal which is a huge relief. Feeling hungover today from the chemo and bad sleep last night, needing to eat often and the ginger drinks help...

clare83, Sat Feb 04, 2012 12:48 pm

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