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Forum: Triple negative

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Thought I was out of the Woods!

Diag Jan 2008 triple negative (6.5cm x 4.5cm tumour). Fully believing I was now safe, three years on from TAC chemo, bilateral mx and right side axillary (5 out of 19 nodes with tissue spread) 3 weeks rads and full of joys of Spring etc. Went for 6 mon...

Posted by Nonny on Sun Feb 05, 2012 1:05 pm with 6 comments

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Thank you everyone for your good wishes. Scan went OK, different scanner this time, full 3D scan instead of 2D as before! Took a full hour lying perfectly still. Consultant made an appointment in six weeks for results when he asked for the bone scan, h...

Nonny, Wed Feb 08, 2012 11:24 pm
Another tnbc here

I've got tnbc locally advanced I'm havin neo-- Adjuvant chemo grade 3 tumour I can't make head nor tale of this advise needed pls xxxxx

Posted by Purple42 on Fri Feb 03, 2012 2:23 pm with 8 comments

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Here the TNBC recurrence thread that Laura mentioned..... http://share.breastcancercare.org.uk/forum/viewtopic.php?f=10&t=28071&p=634524#p634524 Lulu x

Lulu34, Sun Feb 05, 2012 10:16 pm
Triple Negative Stage 1 Grade 3, tumour 2.5cm, strong famili

Hi, after losing mmy mum to breast cancer on the 14th April 2011 I myself was diagonsed 6 days later...I fought so hard for so long for my mum's care and for screening for myself, I was given a mammogram Jan 2010 which showed nothing and told I wasn't ...

Posted by Clara Bo on Fri May 20, 2011 11:12 am with 16 comments

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Hi Ladies, well I am now finished my chemo and decided to go ahead with prophylatic bilateral mastectomy just before Xmas even though my genetic tests for BRCA were negative. Last year was a horrendous journey where I lost my mum, my hair, a tooth(due ...

Clara Bo, Wed Feb 01, 2012 11:35 pm
What does Triple Negative Mean...?

Hi all, I went to see my Oncologist today to discuss my Treatment Plan. Was diagnosed on 6 Oct with BC. It is Ductal Invasive Carcinoma, Triple Negative. I will be having FEC-T 3 x FEC then 3 x T The Oncologist said 'unfortunately' this is the on...

Posted by Daysie on Wed Nov 09, 2011 10:38 pm with 44 comments

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Because the 10 year survival is 75% this means at least 75% of women with TNBC will be alive in 10 years time and because we know it's pretty much cured by 8 years those 75% are still very likely to be around in 20 years time.... But they have now star...

Lulu34, Sun Jan 29, 2012 11:55 pm
HOW OFTEN DOES TRIPLE NEGATIVE RECUR IN THE CHEST WALL AREA?

I WAS DIAGNOSED APRIL 2009 W/ TN IN THE RIGHT BREAST. I HAD A MASTSECTOMY AND CHEMO. OK SINCE BUT NOW SINCE LAST MAY(2011) I HAVE HAD PAIN IN THE STERNUM AREA & AROUND THE RIBS. I HAVE SEEN SEVERAL DRS. THEY SAY INFLAMATION IN THE AREA. I HAD A COLON...

Posted by KINGDOM HOPE on Mon Jan 16, 2012 5:49 pm with 6 comments

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If you go 5 years ned with tn it almost never recurs,if you go 8 years they use the magic word cured!! It is most likely to recur in first 2.5 years post dx then by 5years the risk has reduced drastically-the 10 year stats are going back before the pre...

horace, Sat Jan 28, 2012 9:59 pm
Three Years down - still counting!

Yippee, three years and still clear. Funny how you can push it to the back of your mind until the anniversary comes around. Walking at least four miles every morning, getting quicker so must be getting fitter. Paranoid about what I eat and taking vitam...

Posted by Nonny on Fri Oct 07, 2011 6:52 pm with 11 comments

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Hi butterfly, I've been using Herbatint since my hair came back and would recommend it to anyone. Not only has it kept my hair in good condition and covered all the greys, but it looks very natural.I use the light ash brown which comes out mid/dark bro...

josyemarie, Fri Jan 20, 2012 6:41 pm
one nodule on lung after local reccurance

had ct scan after local reccurance, scan was clear bur foung one nodule on lung, another ct scan end of jan 2012 has anybody else had this.

Posted by lollypop59 on Tue Dec 27, 2011 2:24 pm with 3 comments

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thanks all for your replys, my oncolgist said not to worry eveybody has nodules its quite common, but you still do happy new year to you all x x

lollypop59, Tue Dec 27, 2011 8:26 pm
tnbc

hi everyone im looking a little support really i was diagnosed with tnbc in sept 10 and for last couple wks ive had a pain in my back and tummy went dr he done a water test which was clear so now having blood tests to day and waiting to have ultra soun...

Posted by jsm72 on Mon Nov 28, 2011 9:41 am with 8 comments

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hi gingerbud just to let you no had scan and every thing fine been a difficult few wks but some good news at last hope your doing well have a good christmas jo xx

jsm72, Sun Dec 11, 2011 1:23 pm
Triple nagative with high recurrence rates

I was diagnosed with TN last Dec, with 2cm invasive plus 1 cm non-invasive with 4/19 nodes affected. Stage 2 and grade 2. I had MX, FECx3 and Tx3 and rad. My onc told me that my recurrene rate is 30% to 40% after all treatments. Has anybody got suc...

Posted by Tommy2 on Mon Nov 14, 2011 6:46 pm with 17 comments

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Thanks Val. Your bc is similar to me, but i wonder why your recurrence rate was so different from mine. I was told after the course of treatments: mx, fecx3 & tx3 and 25 rads, my recurrence rate is 30-40%, without chemo, it would have been double rat...

Tommy2, Sat Dec 10, 2011 9:18 pm
feeling so strange..need to vent ..

well i have another week of waitin to have scans then further waiting for results am feeling so strange i feel quite full no real appetite and quite headachy and whoozy today some days dont feel too bad but this is scary i am sure its secondaries as 3 ...

Posted by fairyqueen on Sat Mar 26, 2011 7:21 pm with 6 comments

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hifaiyqueen feel the same love miss allyson

miss allyson, Sun Nov 06, 2011 8:08 pm
dont feel well...

hi all just need to offload really but i feel so unwell esp in the last week,my arm is agony and brings me to tears,my remaining breast ishuge and mottled purple /blue, i am getting breathless so easy and feel so tired,going to christie tomorrow for ct...

Posted by fairyqueen on Thu Nov 03, 2011 5:50 pm with 16 comments

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I am inclined to agree with Rhian about the arm pain issue as I have had something similar myself and the pain was unreal. Glad you've got proper pain relief, Rachel. Hugs to Tina, too, Love, Sarah x

sarah68, Sat Nov 05, 2011 1:28 am
bracca1 varient unknown

hi can any one offer me some advise i had triple negative breast cancer and i received my results from genetic team which were varient unknown so as it wasnt conclusive either way ive opted to have overies removed had app to day and gynogolegist said t...

Posted by jsm72 on Fri Oct 28, 2011 8:23 pm with 2 comments

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hi lulu34 im new to this site so was prob a similar post thanks for your reply i was 38 when diagnosed a yr younger than my aunt when she had bc and she was clear for two yrs before it returned to her overies and unfortunatly spreed to whole body my na...

jsm72, Sat Oct 29, 2011 6:18 pm
how many chemos are available for TN

Hi everyone I am currently on Taxol (week 11) - great reduction on boob lump but questionable about lumps in neck. My Onc wants us to continue with Taxol as he is reluctant to 'abandon' a chemo too early, however he tells me we have plenty more che...

Posted by linda999 on Tue Jul 05, 2011 7:26 pm with 15 comments

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hi every one can any body help i keep hearing different stories i was diagnosed with tnbc 1.7mm and 1 node grade 3 stage2 i think more nodes would have been infected if surgery wasnt brought forward ive had chemo radio and another op to remove all no...

jsm72, Thu Oct 27, 2011 3:06 pm
Just diagnosed with triple negative caner

Hi my name is Jo (41) and I have just been diagnosed with invasive ductal cancer which is triple negative. I had the op two weeks ago to remove the lump and surrounding tissue and some nodes from the armpit. Initial results are good - no cancer in th...

Posted by darlojo on Sat Mar 19, 2011 10:59 pm with 127 comments

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darjo, I had EC in 2006 and was given Metaclopromide anti sickness - i swore i was not going back for more...it transpired i was allergic to the antisickness tablet

ALPS, Tue Oct 25, 2011 12:10 pm
29yrs old with 7 month old baby @ newly diagnosed with TNBC

Hi All, I was diagnosed on the 8th August with BC and a very quick 9 days later had a skin sparing Mx on left side with immediate recon and had a sentinal node biopsy. Had a 4cm grade 3 ductal invasive tumor. Biopsy showed nodes were clear as were mar...

Posted by mmcglew on Tue Aug 30, 2011 9:43 am with 15 comments

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WOW! Thank you everyone for your messages, all really helpful and encouraging! To be honest I didnt expect to get half as many replies and hence havent really checked! Since I messaged (which was in a panic pre chemo), I have had some time to think an...

mmcglew, Wed Oct 19, 2011 8:46 pm
chemo or not? anyone else been given the option?

I am 57 years of age and have just been diagnosed with triple negative breast cancer grade 3 tumour but only 1cm and not in the lymph nodes. I have been told that i hav an 88% chance of it not coming back with just radiotherapy and another 2-3% with th...

Posted by HD on Sun Oct 04, 2009 12:38 pm with 29 comments

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Ive just read the very sad book about Caron Keating (Gloria Hunnifords daughter). She was diagnosed with breast cancer stage 1, grade2, threw everything at it, did everything she could to try and keep it at bay. She had the best health treatment ther...

chrissy16, Sat Sep 17, 2011 5:44 pm
Recurrence/triple Negative

I have had a recurrence on the same breast . 1 1/2 years ago had a WLE grade 3 followed by chemo and Rad. All clear 13 months later although a lot of scarring and reaction to Rad. went back4 months later with some probs. Ended up with Msx . Results ...

Posted by nelliemac on Fri Sep 09, 2011 11:56 am with 3 comments

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I had an grade 1 hormone positive cancer then a grade 3 TNBC in the other side and now got a recurrence of that one, although it's still classed as TN it's slightly different to the primary as it's grade 2 and has a tad more oestrogen and her2 than las...

Lulu34, Mon Sep 12, 2011 9:44 am
Triple negative - what next?

Hi Does anyone have a similar diagnosis? TN, 2.4cm DCIS with 15mm grade 2 cells, SNB clear and no vascular invasion. I don't fit into any of the categories for TN - too old 58, no family history and grade 2 cells. I am going to onc on Tues and am not s...

Posted by Fin on Sat Sep 03, 2011 10:20 pm with 3 comments

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I had TNBC Grde 3 invasive 13mm and DCIS extended for aditional 27mm, node neg. I was 48 at diagnosis. I had Mx followed by chemo (6X FEC). All scans and blood tests have been clear since, and I had reconstructive surgery (TRAM flap) 9 weeks ago. Fol...

et, Mon Sep 05, 2011 1:05 pm
Triple negative and discussing chemo

Hi Folks Looking for some advice. I am TN diagnosed Feb this year. Have had Mastectomy, no lymph node involvement. Started chemo 3 weeks ago, FEC. Ongologist has prescribed x6 and 5 weeks of rads. Appointment arranged with Ongologist to discuss chemo ...

Posted by jreedy on Mon Apr 18, 2011 7:49 pm with 66 comments

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hi blondie i suppose there are no 100% guarantees and unfortunately with different treatment you may still have had the same result, but its very good that you were so vigilant... like you said the SNB is highly effective and its the most reliable met...

Lulu34, Fri Sep 02, 2011 1:40 am
Triple Negative and several nodes testing positive

So frequently when people are describing their diagnosis they add ... but fortunately no nodes involved. This scares me because I had 9/10 nodes which tested positive. I know its not the best diagnosis but is it really so bad to have a large proportion...

Posted by cazza9393 on Wed Aug 31, 2011 8:43 pm with 5 comments

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Sorry - pressed the submit button early! meant to say 'good luck' to everyone else. Love and best wishes. Cx

cazza9393, Thu Sep 01, 2011 12:50 pm
PARP inhibitors

Hi, I'm sure some of you have read stuff about PARP inhibitors, which seem to be new drugs that offer ongoing treatment, post chemo/radio for TN cancer. Has anyone been offered this treatment? I asked my friend who is a chemo nurse about them and ...

Posted by Jo90 on Fri Aug 05, 2011 4:38 pm with 8 comments

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In America they have been frequently used for TN, I agree.

ElaineD, Sun Aug 07, 2011 5:13 pm
Triple Negative - Excellent websites and Info

Hello - I was recently diagnosed with TN, no nodes, am 43 with 2 young children. The website mentioned below is very helpful information for positive for TN. Make sure and also have a look at the heading BREAST CANCER BY TYPE, and also A TALE OF TWO ...

Posted by raemaire on Sat Jun 18, 2011 9:33 am with 17 comments

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I'm fortunate in that in the North East group I'm part of, there is a girl (a mere slip) that is about 6 months ahead of me with her prophyactic surgery for BRCA1 triple neg. So I've never felt alone with it. And we also have a new member with TN. I...

Jo90, Sat Aug 06, 2011 6:23 pm
Metaplastic triple negative

Just found out that not only am I triple negative but my cancer was metaplastic. I understand that it's quite rare and aggressive and I wondered if anyone else was also metaplastic. Lou x

Posted by loupylou on Sat Jul 30, 2011 10:28 pm with 5 comments

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Lol Loupylou Have just found this thread. Have just private messaged you to see if you knew about the facebook site. Geanie - I was diagnsed with MBC last November. There's not really alot of info out there but the fb site is a really good start....

mazbaz, Mon Aug 01, 2011 8:58 pm
Local recurrence - Triple Negative originally

I am 3.5years out from diagnosis, Triple Negative, no nodes. Had a routine Breast MRI on Tues and was called back for an ultrasound on Thurs. They have taken a biopsy and I will get the results in one week. From the way they were talking and all the sy...

Posted by Katie61 on Fri Jun 10, 2011 8:47 pm with 9 comments

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Katie61 glad op is over done all I can tell u is I had mx chemo rads 09/10 I'm also tn and it returned in march in both lungs so like u worried cancer cells were left behind but they are now saying nodes were clear and it went through blood stream it's...

laura64, Thu Jul 28, 2011 9:57 am
scan results :(

well my bcn just called i asked for results over phone and there is progression, build up of fluid behind chest wall (moderate)will drain if causing probs and subtle area on hip so prob have bone scan so despite clear scans 12 wks ago it is on the move...

Posted by fairyqueen on Fri Jul 15, 2011 1:47 pm with 15 comments

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How are you Rachel? X

Gingerbud, Mon Jul 25, 2011 9:38 am

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