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Forum: Talking with others about secondary cancer

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Living with Secondary Breast Cancer Courses-Scotland

Hello, We are running a couple of 2 day Living with Secondary Breast Cancer Courses in Scotland over the next couple of months. Living with Secondary Breast Cancer - Dundee Thurday 24th November with an optional day 2 on Thursday 12th January 2012 ...

Posted by UK Services Team BCC on Wed Nov 09, 2011 12:37 pm with 3 comments

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Hi Loubylou We don’t run anything in Middlesbrough itself but we have recently launched monthly ‘Living with Secondary Breast Cancer’ sessions in Newcastle. There is a chance to meet and talk with other people with a secondary diagnosis and from next ...

UK Services Team BCC, Thu Nov 17, 2011 12:35 pm
Living with Secondary Breast Cancer Course-Cardiff

Hello, We will be running a 1 day Living with Secondary Breast Cancer Course in Cardiff on Wednesday 15 February 2012. It's a free one day course and provides an opportunity to talk openly about living with a diagnosis of secondary breast cancer, shar...

Posted by UK Services Team BCC on Wed Nov 09, 2011 12:31 pm with 0 comments

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Hello, We will be running a 1 day Living with Secondary Breast Cancer Course in Cardiff on Wednesday 15 February 2012. It's a free one day course and provides an opportunity to talk openly about living with a diagnosis of secondary breast cancer, shar...

UK Services Team BCC, Wed Nov 09, 2011 12:31 pm
newly diagnosed stage 4

Hi, Just been diagnosed today with secondaries ( breast lymph nodes,liver & spine)after almost reaching 4years all clear. I'm obviously feeling like absolute crap but have my oncology appointment tomorrow where I'll be told my treatment plan and wonde...

Posted by BigFatMumma on Mon Jan 30, 2012 5:57 pm with 31 comments

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hi Laurie,thanks for that i just always think the worst...went for zometa friday and sister on ward said my oncol had spoke to her and to arrange a CT scan for me, the sonest they could get was 22nd the day before my appt with my oncol...but they have ...

avril5050, Sat Feb 11, 2012 11:46 am
Terminal life insurance payout

Hi I have found several very old threads on this topic but they are so old and sadly a lot of the posters have since died so felt it more appropriate to post a new topic. Have put in for terminal illness payout on my life insurance - terminal rather ...

Posted by LesleyLP on Fri Oct 21, 2011 6:52 pm with 28 comments

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Thanks for all the advice girls - knew I could count on you all :-) Laurie x

alesta29, Tue Feb 07, 2012 9:50 pm
Cancer spread to nodes behind ribs-inoperable

Hi, Hope someone can help me. My mum had a partial mastectomy a few months ago.She is 79 and lives 80 miles away with her husband (who won't let us attend any consultants' meetings) so we are left in the dark about details. She tells me she has 'inoper...

Posted by Elmhurst on Sat Feb 04, 2012 3:13 pm with 7 comments

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I'm sorry to hear about the difficult family situation, which can only make things even more stressful for you all, especially your poor mum. Lucinda has given you really great advice and I hope that your mum's husband will agree to professional help, ...

Angelfalls, Sun Feb 05, 2012 3:33 pm
Returning to work after a terminal diagnosis

Hello, I was wondering if anyone has returned to work with a terninal diagnosis. My onocologist has said that she cannot determine how long I have but will support me in whatever I decide to do. I'm at the point where I don't want to close the door ...

Posted by Steris on Mon Feb 08, 2010 2:59 pm with 27 comments

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Hi Nicky, sorry to hear about your diagnosis, you say you were given months last April, well you are well on your way to a year and from then hopefully the year will be years. Many people on here have extended a short prognosis to many years. Don't fe...

Nicky65, Tue Jan 31, 2012 6:34 pm
Just need to let off the steam!!

Hi girls, Have had a few really stressful days and I think it finally got to me. So thanks for listening. If you have seen my other posts, you'll know that I just had a scan and the results. Generally good, but there are 3 areas I'll need to keep an ...

Posted by m1yu on Thu Jan 19, 2012 1:39 pm with 14 comments

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Dear Miao, I'm glad you are feeling a bit better. Yes my Zolidronate went fine yesterday. Hope yours did too. But I need to have bloods checked again on Wednesday in case I need a blood transfusion. Think I will have to drink lots and lots of r...

scottishlass, Sat Jan 21, 2012 2:12 pm
Mum just diagnosed with secondary bone cancer

Hi there, am new to this forum. My mum who is 82 years old was diagnosed with an 8cm lump in her breast last June. All her lymph nodes were diseased and removed. In July a CT scan showed she has secondary bone cancer throughout her body. At the mome...

Posted by Jessica500 on Mon Dec 19, 2011 2:09 pm with 11 comments

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Hello, My mother is also 84 and has secondary lung cancer. I also would love to talk with someone about the prognosis but as mum is always with me it is impossible so I feel somewhat in the dark too. My mum's chemo has made her very unwell, much worse...

elizabethmajer, Tue Jan 03, 2012 5:18 pm
Loss of libido

I'm not even sure if it my libido I've lost because I still want to have sex I just don't feel anything so there seems little point. This has been a gradual thing, I've been on my treatment for 18 months now (TDM-1) and at first things were fine, then ...

Posted by Nikki123 on Sun Nov 13, 2011 10:01 pm with 16 comments

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Re: Replens, my BCN and GP and the patient information with the product all state that this product is non-hormonal therefore safe to use if ER+. Ditto Sylk

PuffyWhiteClouds, Tue Dec 13, 2011 10:15 pm
Stage 4 breast cancer

Hi,I have stage 4 breast cancer (liver mets). I was diagnosed last september, i had 4 x FEC75 chemo then weekly taxol for 12 weeks with herceptin every 3 weeks. I am still having herceptin. After completion of chemo the liver mets are undetectable and ...

Posted by jenhen on Wed Nov 02, 2011 11:17 pm with 16 comments

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Hello chrisjenks Welcome to the forums, you've come to the right place for support as the users of this site have a wealth of experience and knowledge between them. You may also find it helpful to talk to a member of our helpline staff who are there...

June BCC, Fri Dec 09, 2011 10:58 am
mum just been diagnosed with secondary liver cancer

Hi,I am new to this my mum has been diagnosed with secondary liver cancer from her breast, the doctor has said that half her liver is affected and said she has months rather than years left. She has started chemo, has anyone else had this diagnosed any...

Posted by chazzer1 on Wed Nov 16, 2011 9:09 pm with 4 comments

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Hi chazzer i was diagnosed with liver mets in feb 2009 so over 2.5 years ago. The mets were throughout my liver and nobody has ever told me exactly how many there were (i saw a ct scan image an it looked like lots) i responded well to treatment and al...

tillycat, Thu Nov 24, 2011 9:22 am
Any Irish stage IV ladies on this site?

Hi, Just wondering if there are any Irish ladies out there that are stage IV and would like to chat??

Posted by katel31 on Wed Jun 01, 2011 7:45 pm with 6 comments

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Hi Kate, I am Stage IV and Irish too. I have extensive lymph node and bone marrow involvement. I also had spinal chemotherapy recently for mets to spinal fluid which seems to have worked but due to progression in bone marrow due to start new chemo n...

my angel baby, Fri Nov 18, 2011 11:35 am
any one had the same experience??

dear all, I have bone mets but have just been to onc yesterday . They told me that when i had my ovaries out in september they found cancer cells in them. Feeling pretty down as having mamo, ultra sound , blood tests and another bone density. Having to...

Posted by lizH on Thu Nov 10, 2011 6:45 pm with 6 comments

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Hi Dawn The link above has been changed slightly to advise users that Thursday chat is aimed at those with a primary diagnosis as requested. Kind regards Louise Facilitator

Louise BCC, Fri Nov 11, 2011 7:25 am
Returning to Work

Hi all I'm sure I posted asking for help, but cant see it anywhere. If it does appear, this will be a repeat! I was dx recently with secondaries in bones and lung 12 years after primary. I've been off work since early Sept and hoping to return in a...

Posted by HelHel on Sat Nov 05, 2011 10:06 pm with 3 comments

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Thanks DJ007 and Jo No idea why I couldnt find the post! Prob cause I am rubbish with technology! The Charter info is most useful and I will be printing this to give to my manager just in case he hasnt seen it. Thanks again, H

HelHel, Sat Nov 05, 2011 10:55 pm
Lung mets - what are the symptoms?

Hi all, I'm obsessing about this at the moment because I had an x-ray of my shoulder and upper chest last week which prompted my surgeon to order an urgent CT scan. I don't have a cough but I do have quite a lot of pain. I had put this down to the he...

Posted by nymeria on Tue Sep 13, 2011 11:52 am with 6 comments

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Hi Nymeria, I realise this post might be a bit late but here goes. I was dx with multiple lung mets to both lungs at the same primary dx with IDC to the right breast. Have had chemo taxotere/fec x6, surgery mx with lymph node clearance and next week st...

sarahlousie, Fri Nov 04, 2011 9:21 am
How do your partners deal with your diagnosis?

I was diagnosed with secondary breast cancer 3years ago this week, I had had no primary diagnosis & no symptoms - it came right out of the blue and devastated my whole family. I was initially told I had 'months' they weren't specific but we assumed 6-...

Posted by Nikki123 on Sun Oct 30, 2011 9:00 pm with 5 comments

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Hi All I have recently been dianosed with IBC but before that in September 2009 my husband was diagonsed with cancer of the oesophogus. We had been through a rough time prior to the diagnosis and I was all for leaving him a few months before I found ...

weme, Mon Oct 31, 2011 6:49 pm
The little things that make a BIG difference

Hi Ladies, If you haven't read the book The little things that make a BIG difference that I received through the post you all must it is the best book i've read. Love to all Jenna x x x

Posted by JenBourne on Tue Oct 25, 2011 12:49 pm with 3 comments

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Another post about the booklet: http://share.breastcancercare.org.uk/forum/%22the-little-things-that-make-a-big-difference%22-t34208.html I took a copy (+ 4 of the bookmarks) to my clinic appointment yesterday. My BCN was very pleased to receive it a...

mrsblue, Wed Oct 26, 2011 8:46 am
Cyberknife

Hi ladies I wonder if anyone can give me some advice. I had a CT scan recently which showed that the lesions in my liver have progressed to double the size (the largest, I have four, from 1" to 2") and my onc has advised six sessions of Taxotere chem...

Posted by Trixie on Fri Oct 21, 2011 9:42 pm with 4 comments

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Trixie, I have read your pm, and replied by pm. It will be a fairly long read, but hopefully the info will be of help. Additionally, forgot to mention in my pm, that if you want the contact of someone at Accuray who can let you know about research that...

Lemongrove, Sat Oct 22, 2011 1:35 pm
Here I am again 5 years later...!

Hello, just thought I'd re-introduce myself. My name is Tina, I'm 43 and was diagnosed with bc and bone secondaries in August 2006. I had a mastectomy, WLE (14/29 positive) and commenced on Arimidex and IV Pamidronate. My bone secondaries were in sk...

Posted by Tina67 on Sun Aug 14, 2011 9:24 pm with 16 comments

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Hi I am new to this site too. I have secondary breast cancer (diagnosed a year ago) and am looking into chemo sensitivity testing where you are tested to see what works on your particular cancer. They test for chemo drugs and also natural alternatives ...

Hannah M, Thu Oct 20, 2011 7:47 pm
lazy cancer

Hi, New to this and just wanted to know if their was anybody else out there who feels the same as me.I had a lumpectomy and lymph nodes removed 7 years ago. I followed this with chemo and radiotherapy. 3yrs later it came back in lymph nodes in my neck....

Posted by inabird on Tue Oct 11, 2011 3:46 pm with 1 comments

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Hello inabird Welcome to the forums, you've come to the right place for support as the users of this site have a wealth of experience and knowledge between them. Whilst waiting for replies you may find it useful to contact our free helpline on 0808 ...

June BCC, Tue Oct 11, 2011 3:55 pm
Should I tell my parents

Hi ladies Just looking for some advice. I was diagnosed in 2005, then with bone secondaries in 2008. CT scan in Jan this year showed progress in bones and secondaries in both lungs for which i received chemo which finished in June. A few weeks ago ...

Posted by trishg on Wed Sep 28, 2011 10:31 pm with 9 comments

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I think whether or not to tell your parents is a very personal decision based on how your parents will react and if you can cope with that reaction. In most circumstances, I would say that your parents should be told if they are able to cope with news ...

cherryorchard, Fri Sep 30, 2011 12:59 pm
Feeling sorry for myself

Going to have a moan today! Had a bad night couldn't get to sleep with this bloody cough so ended up taking 2 sleeping tablets as they're fairly mild. Supposed to go to radiotherapy this morning but couldn't bring myself to leave the bed. I feel so out...

Posted by Magda on Fri Sep 23, 2011 11:51 am with 13 comments

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Oh by the way the Monday clinic went really well. The rads team were incredibly supportive and understood completely just told me no to do it again:) lol.

Magda, Tue Sep 27, 2011 9:24 pm
Feel unimportant and let down!!!

Hi Ladies, Sorry for this but i need to let off steam!!! I havent felt good past couple days, i have extensive bone mets but have been feeling very heavy chested, having stitch like feeling in right hand side under my ribcage,plus other things....gene...

Posted by lucy3 on Wed Sep 14, 2011 11:07 pm with 17 comments

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Definitely worth saying "And the scan isn't until 16th October,that's 3 weeks the waiting is terrible" Good that you are getting more support, you deserve it!

Lavender Lassie, Sun Sep 25, 2011 11:29 pm
You would think I would be grateful????

Hi all Just a general moan, which I hope some can relate too. I have bone and Liver secondaries, diagnosed this Feb and been through the mill a bit, couldn't walk hardly at all a few months ago. I had to stop the FEC at the 4th one as my bloods were go...

Posted by potmaid on Wed Aug 24, 2011 6:15 pm with 9 comments

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Thank you once again :o) It really helps to unburden urself on here with such wonderful understanding people, that really relate to the situation. I have just escaped for the weekend, cause I truely thought I would explode lol I went to an old school f...

potmaid, Sun Aug 28, 2011 5:46 pm
Breathlessness Tips for Lung Mets

Hello All I'm really struggling with my lung mets at the moment, my breathing is terrible I have coughing bouts which are very scary as I can't catch my breath, and when I get up or down even something like getting out of bed or off the sofa makes my ...

Posted by poppet75 on Sat Aug 13, 2011 2:17 pm with 8 comments

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Thanks Lionheart, I'll get onto the booklet ASAP, got an app next week with breathing specialist too. Totally wiped out over the last couple of days, how do you cope with the frustration it's driving me mental!

poppet75, Sat Aug 20, 2011 12:42 am

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