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Xeloda / Capecitabine - Your Top Tips, please?

Hello, This time next week I'll be going for my education session on how to take Xeloda, ready to start treatment the following day. So I thought it would be really useful to hear from those of you who are actually taking this drug, as I'm sure you hav...

Posted by Angelfalls on Tue Dec 27, 2011 2:30 pm with 31 comments

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Hi Ladies, Wow Belinda thats great news and long may it continue. I always think of Marilyn you're both something to aspire to. Just to pick your brains I have noticed that my skin is changing colour. I'm the original milk bottle. My daughter came...

Steris, Fri Feb 10, 2012 11:51 pm
Eribulin/ Halaven Ladies

Hi ladies thought it might be a good idea to start a thread for those of us on the new chemo drug, Eribulin. There are not many of us around but I thought it would be good to share our experiences to support each other + to help those who start Eribuli...

Posted by Gingerbud on Sun Jan 01, 2012 12:49 pm with 24 comments

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Hi everyone Hope you're all doing well. Gingerbud, hope your holiday went well and you've come back refreshed and ready to continue the fight the good fight. I finished cycle 3 last week. The same day, started with a stinking cold. Felt not too ba...

GrannyScouse, Wed Feb 08, 2012 12:03 am
Cement Injection into Spine

Saw my Oncologist today for a routine check-up and he has ordered an emergency MRI on my spine next week as a recent x-ray is showing something "extra" on my spine (in addition to the mets I have in that area). I asked what the likely treatment could ...

Posted by Debonair7 on Wed Oct 20, 2010 10:26 pm with 31 comments

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Glad to hear your operation went well. My mum has now been admitted to hospital with severe neck pain. They are giving her a ct tomorrow to see the extent of the damage and if they can do anything.

gjl79, Wed Feb 01, 2012 10:47 pm
Mitral Valve regurgitation

Hello lovely ladies, not sure if I've posted this in the right place or not, but here goes. Have BC with bone and liver mets, have done Tamoxifen, Arimidex, Aromasin Letrozole, FEC and just been taken off Faslodex as I feel so awful. Seeing Onc on Tues...

Posted by Jane 75 on Sun Jan 29, 2012 1:26 pm with 2 comments

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Sorry I can't help either but bumping in hopes your post will be seen by someone who can. I agree with Steris, wait and have a chat with medics about exercisre choices, I'm sure you'll be able to something but you need to know what not to do - good luck!

JulieD, Tue Jan 31, 2012 11:08 pm
Coriolus Versicolor

Hi everyone The above name has been given to me by a friend of a friend who has secondary cancer in her bones and lungs (as do I). Had little search on web, and seems its a herbal medicine derived from mushrooms which is used to boost the immune syste...

Posted by HelHel on Mon Jan 30, 2012 7:26 pm with 4 comments

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I don't know anything about this myself - too busy complaining about conventional treatment - but there is a fairly reputable hospital in the USA, Memorial Sloan-Kettering, which has good information on this kind of thing, including a page on this mush...

Zeppa, Tue Jan 31, 2012 11:04 pm
When to change treatment

thanks in advance for your help. I am currently on zometa and exemestane for my bone and possible lune mets, I sunnyweather on to exemestane in May last year as a scan revealed a couple of new bone mets and small nodules in my lungs. I had been on let...

Posted by fuzzyface42 on Fri Jan 27, 2012 7:16 pm with 9 comments

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Hi, I'm possibly in a similar position too - waiting to find out whether the recommendation will be to move off the hormonal treatments. They seem to be keeping my bone mets stable but I have a chest wall mets area that popped up after a year and a bit...

Tournesol, Sun Jan 29, 2012 1:59 pm
Chemo and hot flushes

Hi all, having had a few hot flushes in 2009 when I was on FEC, they're now back with a vengeance thanks to Taxotere (I'm 32 and presuming this is menopause or at least menopausal symptoms). Anyone got any tips for dealing with this? My onc says sage t...

Posted by francescap29 on Mon Jan 23, 2012 4:28 pm with 14 comments

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Well I'm going to Thailand next week which will obviously be amazing, except the heat + flushes = NIGHTMARE. I've just come off Tax now (not worked) so perhaps they'll settle down a bit? Flushes stopped and periods came back within 3 months whilst on ...

francescap29, Fri Jan 27, 2012 2:04 pm
Can it be that fast?

Hi everyone I'm not sure if anyone can answer this but I thought I would try anyway. My mum has been dx with secondary breast cancer with liver mets. She had a mamogram in April 2011 which was clear. She discovered a lump at the beginning of Novemb...

Posted by adelelouise13 on Wed Jan 25, 2012 2:41 pm with 12 comments

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I had primary breast cancer in 2000. I had a 1cm ductal cancer with no spread to lymph glands. When I had my first mastectomy they found a 9mm lobular cancer in my breast that had not shown up on any scans or mammagram. 10 years later in 2010 I had a ...

Esha Ness, Fri Jan 27, 2012 12:19 am
Moisturisers when on capecitabine (Xeloda)

Aqueous cream, Boots Expert conc.hand/nail cream, Diprobase, E45, Flexitol for heels, Sudocrem, Udderly Smooth - bewildering choice! Let's compare experiences. What's your favourite? Do you keep to one product, or change moisturiser from time to time...

Posted by mrsblue on Fri Mar 04, 2011 10:16 am with 16 comments

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I just remembered this thread... hope it may be revived as it could offer useful tips. Here's the link to the "Tips" thread: http://share.breastcancercare.org.uk/forum/viewtopic.php?f=94&t=35108&p=628842#p628842 I've got used to reading the ingredien...

mrsblue, Tue Jan 24, 2012 11:29 am
Very depressed - please help!

Hi Ladies, Back again! Sorry to post here, but dont know where I belong (regional recurrence). Just need to talk. Dx 2008, superclav node recurrence 2010, 2nd superclav recurrence (2 nodes)Nov 2011. Told that herceptin hadnt worked, chemo clearly hadnt...

Posted by Gemdancer on Tue Jan 17, 2012 10:01 am with 16 comments

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Many thanks ladies for all your support. I feel stroked!!! I have been feeling very alone. My friends are lovely, but they aren't in this world. I have a very good Onc at an excellent hopsital (very research current), but he is very direct and very sc...

Gemdancer, Thu Jan 19, 2012 2:38 pm
Zometa Anyone?

Hi everyone I am currently on monthly Zometa IV for bone mets. Recent consultation with onc says he wants me to continue un this until further notice. My private health will cover just 6 sessions. Onc will write the necessary letter to recommend furt...

Posted by HelHel on Tue Jan 17, 2012 10:36 pm with 4 comments

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Hi My PCT doesn't fund Zometa full stop so it wasn't an option for me and I started on Pamidronate, which is another IV bisphosphonate. It therefore may be a possibility if your private health care won't fund Zometa after the 6 months that you can sti...

nicky08, Wed Jan 18, 2012 9:48 am
Xeloda and the 'week off!'

Have just come to the end of my first 3 week Xeloda cycle. The first 2 weeks taking the tablets were OKish. I had a little tingling/mild soreness in my feet, but no peeling! I had a bit of acid indigestion, but no sickness or diarrhea. I woke up on ...

Posted by Nicky65 on Mon Sep 05, 2011 5:53 pm with 152 comments

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Hiladies, That's good news m1yu I'm so pleased that the Xeloda is working for you. It must be such a relief. Has anyone had problems with rashes? I had one coming up on my hands on Tuesday I seen my practise nurse who prescribed hydrocortisone and ...

Steris, Tue Jan 17, 2012 10:48 pm
SKIN METS

Hello ladies and a happy new year to you all. I recently had a skin nodule removed from my side which turned out to be skin mets. I now have a similar thing on the side of my face which the oncologist thinks is prob secondaries as well. I really don...

Posted by trishg on Thu Jan 12, 2012 5:58 pm with 4 comments

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Hi Trish, My Dr did wonder whether it could just be skin cancer as I am very pale and burn easily. Although I am super careful about sunscreen etc, but I suppose like all these things that's not a 100% guarantee! :) The irony is that my OH is very muc...

nymeria, Mon Jan 16, 2012 10:02 pm
Hypercalcaemia

Hello, Last time I saw my onc, she mentioned that my bloods had shown increased levels of calcium which could indicate that the nodule on my thyroid was actually affecting the parathyroid. It could also be related to nearly five years on Calcichew whi...

Posted by Angelfalls on Thu Jan 12, 2012 7:36 pm with 4 comments

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Thank you all for your replies. Yes, between the onc and Google, I seem destined for hypochondria! I suggested that I stop taking the Calcichews when she told me my calcium was high and haven't had my bloods done since then. Next time will be when I ...

Angelfalls, Fri Jan 13, 2012 1:38 pm
Trial Drug/Chemo Break

Hi ladies! Hope your all doing ok just wanted to get everyones opinion on a chemo break it's been mentioned to mum due to side effects but I have mixed feelings about it. Would love any comments on this? Love to all Jen

Posted by JenBourne on Wed Jan 11, 2012 11:22 pm with 6 comments

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Hi jenbourne no the Marsden in Sutton yea only just started xeloda on tue no se at moe just bit of feeling sick many thanks Laura

laura64, Fri Jan 13, 2012 12:01 am
Gamma knife for multiple brain mets

Earlier this year I had gamma knife treatment after an MRI showed 24 brain mets ranging in size from 3mm to 3.5cm. I was told that they have recently found that gamma knife can be very successful when used to treat people who have much larger numbers ...

Posted by tillycat on Thu Nov 24, 2011 8:05 am with 11 comments

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thanks having a read sounds positive the cage scares me a little lol x

waltonlizie, Tue Jan 10, 2012 10:26 pm
Pls help

Hi I'm due to have a ct scan tomorrow and was dx today with a urine inf do u know if they will still let me have it as I've been waiting 3 months and really don't want to cancel it is it best I ring and ask or do u think they will just carry on many th...

Posted by laura64 on Wed Dec 28, 2011 10:40 pm with 4 comments

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Hi ladys just need to tell you that have c.t scan booked for 18th of this month really getting worried now, have been in bed for 3 days now after 3xfec and feeling so weak and tierd ,sorry but realyneed some good news PLEASE thanks for listerning every...

josie1, Mon Jan 09, 2012 4:31 pm
Help please: Triple Negative Skin mets

Hi all, I have secondary BC in liver and bone, but mine is not triple negative and I don't have skin mets. This is a post for a friend in Cyprus. If any of you have any positive experiences and suggestions, please share. Thanks in advance. xxx

Posted by m1yu on Fri Jan 06, 2012 12:55 pm with 5 comments

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Hi again, Tina, Thanks for info and especially the link! I will pass those on. Sorry to hear your organs got affected, hope you're having some effective treatment for that. Thanks a million!! xxx

m1yu, Fri Jan 06, 2012 11:35 pm
Pain relief for secondaries to the bones

Hi, havent been on here in years so hi to everyone, i have secondaries to the bones and i use to take 48 pills day and methadone twice a day morphine which i could take every hour and ketamine nothing was working so i decided to come of all pills and s...

Posted by clairemm on Fri Dec 16, 2011 2:07 am with 13 comments

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Sue, Do you have that as your breakfast, instead of cereal etc, or is it instead of breakfast? Isobel

izmark, Fri Jan 06, 2012 4:51 pm
sternum and skin infiltration

hi as anyone else had cancer cells in the sternum and I also have a strange rash on my left side and that is cancer cells. I am still working but pain is slowly increased where I feel I have been thumped in the chest. I haven't spoke to anyone who is...

Posted by Maz7 on Wed Jan 04, 2012 1:03 pm with 1 comments

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Hello Maz, I had a regional recurrence in the sternum five years ago which was treated with rads, an ooph and Anastrozole which kept me NED for almost five years. I was diagnosed with a second recurrence back in October and was heading for a sternecto...

Angelfalls, Wed Jan 04, 2012 5:41 pm
Significance of Tumour Markers?

After having been on Tyverb/Xeloda for 20 months my blood test results have shown a steady climb in tumour markers recently - currently at 40. I have had a CT scan and having bone scan tomorrow so should get the results next week. Medical staff not v...

Posted by Tools29 on Wed Jan 04, 2012 11:41 am with 4 comments

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Fingers crossed!

Lulu34, Wed Jan 04, 2012 5:25 pm
Mouth Infection ?!

Hi Ladies! Happy New Year to you all not sure Happy New Year is always the right phrase but sending you all lots of happiness in the year of 2012. As some of you know my mum is on a TDM-1 trial and is having some problems with her mouth. She was lo...

Posted by JenBourne on Sun Jan 01, 2012 7:56 pm with 7 comments

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Mum spoke to the clinic this morning and they have prescribed Metronidazole 400mg. Anyone else been on Metronidazole? She has treatment next Wednesday so they will asses then and see if any better then. She is still taking the fotijuice and fortisip'...

JenBourne , Tue Jan 03, 2012 4:15 pm
Anyone looked into PDT??Very interesting link attached

Hi ladies I looked into this briefly a few months back and my hubby has recently been doing some research on this procedure in China and asia. It sounds like a very exciting and promsing new treatment- take a look at this UK site... http://www.killingc...

Posted by Gingerbud on Sun Jan 01, 2012 4:25 pm with 10 comments

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Yes lemongrove, here in the uk PDT isn't really developed enough yet for use with mets. But the next gen pdt is offering whole body treatments so maybe the uk will follow in time. The killingcancer uk site is doing a (small) breast cancer trial using...

Gingerbud, Tue Jan 03, 2012 12:59 pm
hair loss advice please!

Hi ladies This is possibly a bit of a 'fluffy' question when everyone is dealing with such important stuff - but i really could do with some advice here! i am back on iv chemo again after a 2 year break (xeloda tablets kept me stable for quite a whil...

Posted by tillycat on Thu Nov 24, 2011 9:51 pm with 13 comments

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Hi francesca, would you mind posting a link about the hair piece u have ordered please. I'm keen to learn more + to find out costs etc. think lots of ladies on here would love to know more about this option. I've just started eribulin + am awaiting the...

Gingerbud, Mon Jan 02, 2012 7:20 pm
1st Eribulin- why no steroids??

Hi ladies sorry to post again about eribulin but I'm a little concerned that I've not been prescribed any sterids following my 1st eribulin tday. I did question the nurse but she was adamant I don't need them. That's great if she is right- bloody hate ...

Posted by Gingerbud on Thu Dec 29, 2011 6:28 pm with 6 comments

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I Need to mention that I was on a reduced dose of eribulin because my liver function wasn't great - maybe that's why I needed steroids. I am worrying now that I have sent some of you off in a panic for no need Also interesting (well to me anyway!) my...

tillycat, Sun Jan 01, 2012 10:53 pm

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