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Yay - another Stable Mabel :-)

Hi ladies Just wanted to share my good news - bone mets are stable - no change, other than the bone strengtheners doing their job, since my last CT scan on 2009 :-) I'd forgotten how awful the wait for results is! I am sooo pleased and wanted to give ...

Posted by nicky08 on Thu Oct 06, 2011 3:04 pm with 90 comments

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Hi Mandy, welcome!!! I'm new to the club too - but I like it here!! Dm nd Belinda, thx for your info. I hope to stay stable whilst on a treatment break.....just hope that is possible!! Sadie Xx Xx

SadieL, Sat Feb 11, 2012 6:55 pm
4 Years On and Great Scan results ...

Hi Not sure this is really inspiring but could give hope to others. I was originally diagnosed in July 2007 with breast cancer and secondary Liver mets at the same time - doubly whammy. I was 39 and had a 3 1/2 year old daughter and an 8 month old ...

Posted by dm1968 on Sun Jun 19, 2011 12:37 pm with 44 comments

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Fantastic news Dawn! Very inspiring - here's to many more clear scans Lesley xxx

LesleyLP, Thu Feb 09, 2012 11:18 am
Confirmed - I'm definitely NED

I reported back in March 2011 that following Cyberknife treatment in October 2010, the mets in my skull appeared to be dying off and there was no evidence of disease anywhere else. I've since had more scans (in October 2011), and was told today that no...

Posted by Lemongrove on Mon Nov 14, 2011 6:33 pm with 52 comments

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Just caught up with this post. What absolutely fantastic news for you lemon grove. I hope you had he best Christmas ever. What a fab story xxxxx

dm1968, Wed Feb 08, 2012 9:51 pm
Stable CT with secondaries.

Just a little note to say I heard from my latest CT my chemo, Capecitabine, is still holding my mets stable after three and a half years of continuous cycles. I'm just so, so grateful for the time I've had with this chemo. Wishing you all long periods ...

Posted by belinda on Wed Oct 05, 2011 4:47 pm with 28 comments

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Hi everyone else in the stable!! Thank you so much for your messages! Alex - you made me feel all warm and cosy inside - thank you! Nicky - I do hope you can join to, very very soon. Door wide open and hope liver and brain start playing game soon!! ...

SadieL, Tue Feb 07, 2012 9:53 pm
2 years since bone mets diagnosis

Hello to all and 2012 Its 2 years today since my bone mets diagnosis ( primaries in 2000 aged 46 years) Managing side effects of Capecitabine. Inspiring news is I still feel well and have absolutely no pain. Continue to swim, cycle, yoga etc and have...

Posted by Esha Ness on Wed Jan 04, 2012 6:55 pm with 4 comments

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Good to hear your news Esha and it's lovely to hear of your gardening plans Isobel. Hope you can find some answers and solutions that help Rosie. Do push for the scan, good luck. x

belinda, Fri Jan 06, 2012 11:54 pm
I'm going to be a granny

Haven't posted on here for a little while, but can't resist telling everyone I'm going to be a granny. My daughter is a bit of a career girl, and has asked if I will look after the baby for three days per week when it's born. Needless to say, I'm now w...

Posted by Lemongrove on Tue Oct 11, 2011 1:31 pm with 28 comments

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Hi Lemongrove, and congratulations also, such fantastic news, I am sure you are going to make a great grandmother, best wishes and hopefully your scans will show be stable and all will be fine. Its so nice to read some good news and not cancer related....

sarahlousie, Wed Nov 09, 2011 4:05 pm
New drug gives hope for triple negative BC

I'm not triple negative, but have been sent details of this new drug which has been very successful in Trials. Hope link works. http://www.cancernetwork.com/triple-negative-breast-cancer/content/article/10165/1776084

Posted by Lemongrove on Fri Oct 21, 2011 8:50 am with 4 comments

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I am triple neg.Thanks for posting this.

poodlepatch, Sun Oct 23, 2011 10:16 pm
Blog

Dear all I'm not sure if my blog should be described as 'inspiring', however I've recently started writing one to explore my feelings after being diagnosed with secondaries in January last year. It hops about a bit from my original diagnosis, when I w...

Posted by Tawny on Sat Sep 24, 2011 11:23 pm with 4 comments

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Hi Alison, Your blog makes interesting reading and you express all the emotion you feel so well without being maudlin. I think you are brave to lay your feelings so bare and some of what you write makes uncomfortable reading but having cancer is not a...

carolihne, Sun Sep 25, 2011 8:14 pm
Inspiration to me

When y friends sometimes call me 'brave' or 'an inspiration', although I know full well that it's well-meaned and I truly appreciate the well wishes they send me...... I am not inspirational. I am currently on a ward in The Christie hospital and have ...

Posted by poannie on Wed Aug 24, 2011 11:24 pm with 2 comments

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Your sharing of your experiences is "an inspiration". There are so many stories of the challenges in life and it's good to be reminded of them Thinking of you and hoping you make progress with your treatment - and thanks so much for sharing x

francesw, Thu Aug 25, 2011 10:35 am
Inspiration to me

When y friends sometimes call me 'brave' or 'an inspiration', although I know full well that it's well-meaned and I truly appreciate the well wishes they send me...... I am not inspirational. I am currently on a ward in The Christie hospital and have ...

Posted by poannie on Wed Aug 24, 2011 11:24 pm with 1 comments

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even in our fight i totally get what you mean i just see some people as an inspiration but in eyes of others that is what you are to them.... hugs xxx

fairyqueen, Wed Aug 24, 2011 11:29 pm
Just 4 months

HI all I was diagnosed in Dec 10 with secondary in my lungs, liver and bones and whacked straight onto Taxotere and Zometa. In just 4 months I had my lungs showing no sign of disease and my liver with just shadowing left (largest had been 10x6mm) and...

Posted by iswhiz on Sun Jul 24, 2011 4:21 pm with 8 comments

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J Have a look at this thread, I keep reading a few pages a day to keep me inspired to carry on. Have finally decided to completely give up drinking with is going to be V tough as I love a drink and all my friends do... ah well, worth it if it can hel...

iswhiz, Mon Aug 08, 2011 2:50 pm
5 years ago today... :)

I had my primary diagnosis exactly five years ago, multiple bone mets dx 3 weeks later, and multiple liver mets dx two years ago. Great family day yesterday, country park and miniature railway with two of our children + spouses and our four grandchild...

Posted by mrsblue on Sun Jul 31, 2011 11:10 am with 12 comments

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Hello Mrs Blue, I have just been diagnosed with two secondaries on my Liver. It has come as quite a shock, as I was told I was in remission just last January. I have been prescribed Capecitabine and have looked up all the main side effects that can app...

pixiecut, Fri Aug 05, 2011 2:27 am
Good scan results

14 month ago i was diagnosed with secondaries in the liver did,nt think i would be here much longer or think i could get back to normal and im here and things are back to normal today i got scan results and it has now shrunk to 7mm last april it was 3c...

Posted by linzs on Thu Jun 23, 2011 9:05 pm with 4 comments

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Hello linz, I have just been told that two secondaries have shown up on my latest scan - on each lobe of my liver. After being given the news that I was in remision in January, this news has come as quite a shock. Now I have to have Oral Chemo(Xeloda...

pixiecut, Fri Aug 05, 2011 2:04 am
running a 10k next week

Hi, hope this helps... In September 2008 I was diagnosed with liver and bone mets. I was put on a regimen of taxotere chemo and pamidronate and was hospitalised twice with neutropenia. I lost my hair, my energy, and all my confidence and self esteem. ...

Posted by candide on Sat Jul 02, 2011 10:31 pm with 16 comments

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Congratulations - that must be a really good feeling - you have almost made me feel like taking up jogging again...

Tournesol, Mon Jul 11, 2011 11:08 pm
living with the metastatic breast cancer

I have posted this on behalf of new user Maureen:- Hi I just found this website and thought I would reach out. I was diagnosed in 2000 with stage 2b breast cancer, I had a double mastectomy, chemo and radiation. I was cancer free for 7 years, in 2007 ...

Posted by Sam BCC on Fri Jun 24, 2011 8:08 am with 3 comments

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When I was first diagnosed with secondary breast cancer I was very frightened and scare of death.But since I'v been watching Ghost Hunters I'm certain there is an afterlife and now I feel better about it. I thought I'd only last 6 months and I told wor...

veggiebab, Tue Jun 28, 2011 11:47 am
Great stats

http://www.eurekalert.org/pub_releases/2010-09/uotm-mas092910.php This is a link to the latest MD Anderson research about survival with secondaries. The main figure relates to 10 years! And what's more, the last figures are from 2004, so they're alrea...

Posted by CharlieRay15 on Thu Jan 20, 2011 10:26 pm with 20 comments

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Hi I was just reading the earlier posts on this thread. I read an article recently that said the main reason for the very much improved statics for stage 4 and the earlier stages of bc is herceptin. As her2+ type bc is becoming more common(very sadl...

Mackers, Sun Jun 19, 2011 2:56 am
Possible Secondary Breast Cancer

I had cancer of the right breast in May 2009 followed by 6 months of chemo and 4 weeks radiotherapy. Had one year free of any medication or problems. In January of this year I developed cellulitis of my right breast and was treated with antibiotics. Th...

Posted by Macdonald on Wed Jun 08, 2011 12:59 am with 4 comments

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Oh dear, what a disappointment. I don't know whether this is any help at all, because of you having cellulitis. However I had to have an ultrasound recently and apparently I've still got evidence of resolving seroma, despite being over a year since mas...

Karis, Thu Jun 09, 2011 12:23 pm
diary log of my journey

I have kept a log of my breast cancer experience since diagnosis last August. I would be keen to make this available to a journal or for sale as a book and have all proceeds go to Breast Cancer Research. Can anyone offer me any advice on how I should g...

Posted by jaynek on Sun May 29, 2011 8:57 pm with 0 comments

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I have kept a log of my breast cancer experience since diagnosis last August. I would be keen to make this available to a journal or for sale as a book and have all proceeds go to Breast Cancer Research. Can anyone offer me any advice on how I should g...

jaynek, Sun May 29, 2011 8:57 pm
Inspiring secondary stories.

I've posted these links many times (sorry!) but for new people diagnosed with secondaries.. http://www.bcna.org.au/sites/default/files/messages_advanced_cancer_0.pdf ..australian women living their lives with secondaries and this from BBC news.. htt...

Posted by belinda on Sun Jul 18, 2010 11:11 am with 48 comments

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Just bumping up this thread for englishhc.

belinda, Tue May 10, 2011 7:24 pm
Took 8 years to return even with no clear margins then

Maybe not the correct forum but I was quite inspired by a friends story this afternoon. His mother is 86, and had double mx 8 years ago. She was told at the time they didn't have clear margins and had "left some behind". She's just been told it's spr...

Posted by broomsticklady on Tue Apr 26, 2011 9:30 pm with 0 comments

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Maybe not the correct forum but I was quite inspired by a friends story this afternoon. His mother is 86, and had double mx 8 years ago. She was told at the time they didn't have clear margins and had "left some behind". She's just been told it's spr...

broomsticklady, Tue Apr 26, 2011 9:30 pm
Still in remission - 26 months

Hi everybody. I don't very often come on to this forum but have found this relatively new section and would like to share my story with you in the hope that it inspires. I was originally diagnosed with micro-invasive ductal cancer in situ in 2001 aged...

Posted by Hope2 on Wed Dec 15, 2010 12:10 am with 44 comments

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Anne W - I dont know if you were speaking to me about immune supplements but I am taking Optibac Probiotics for the immune system and I think they are very good, certainly got me through the first round of chemo, due for the next round this thursday. A...

sarahlousie, Tue Apr 26, 2011 6:12 pm
Secondary Breast Cancer - Impact on your children

I was diagnosed with Secondary Breast Cancer Sept 09, Have had oral chemo for the last 18 months and started IV chemo yesterday, I live life to the full and try to be positive all the day as I feel that there is not much you can do but accept what is h...

Posted by macyruby on Fri Apr 08, 2011 10:15 am with 2 comments

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hi Macyruby, I remember when i lost my hair that my 6 year old was quite upset by the whole thing, and needed reassurance -children do understand a lot more than we think and pick up on feelings and stresses very easily. I have always tried to be as h...

india1, Mon Apr 11, 2011 5:47 pm
2 years since my liver and bone mets were diagnosed

Hello I thought i'd make use of this very welcome new section of the forum to share some good news. I have just passed the two year milestone since my liver and bone mets were diagnosed and my CT scan, done today, shows NED. I've had taxotere chemo ...

Posted by candide on Tue Jul 20, 2010 6:33 pm with 11 comments

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Thanks so much for sharing your good news - it's great to get a positive sense of what can happen with good treatment. Long may your good health continue! Fran

francesw, Fri Apr 08, 2011 10:10 am
Living life to the full 3 years on!

Have just past my 3 year anniversary of my devastating secondary diagnosis in both lungs and around my collarbone. As many of you may know my husband was unable to cope and walked out soon afterwards and 2008 was an incredibly tough year and I just cou...

Posted by AnneS on Sun Mar 06, 2011 6:43 pm with 19 comments

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Dear Anne, Many thanks for sharing your good news. Your inspiring story has made my day. Best wishes, Sue

AvenueSue , Thu Apr 07, 2011 10:01 pm
A surprise

Hi, Well this disease still keeps surprising me! Having lost a dear friend Jackie recently to Sec BC, I've just been to my appmt. with onc. and am still "shut down", lung mets still stable and bloods good. 2 Years on from my second lot of chemo and now...

Posted by hazelnut on Tue Oct 12, 2010 10:24 pm with 10 comments

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Hi Bess It is great to get results so quickly - it's an attitude thing rather than anything else, it's not as if they've got any special equipment or anything. Radiology has got the image of being a specialism for doctors who don't really like contact...

CharlieRay15, Mon Nov 15, 2010 5:12 pm

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