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Forum: Lymphoedema

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sheep

Any shepherdesses out ther?

Posted by wendy52 on Fri Feb 10, 2012 6:48 am with 8 comments

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To be fair I didn't either Zeppa, there aren't many clues in the OP, not much to go on, I think Carolihne must be psychic! It must be a fairly small world, occupationally, I know there are acres and acres of mountainous sheepfarms especially Wales and...

hymil, Sat Feb 11, 2012 1:34 am
Lymphoedema and working in a hospital

Anyone got experience of working in a ward environment while having lymphoedema? Am trying to find out if it had impact on types of activity you can do and infection control issues eg. Can you wear a pressure garment and still have patient contact?

Posted by lucypickle on Sat Oct 15, 2011 9:59 am with 19 comments

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Had review at Occ Health on Monday and am glad to report I met with someone who knew the facts and was not rude! I will return to work at start of April on phased return and have been told not to concern myself with the lymphoedema just yet.It is recog...

katyb, Thu Feb 09, 2012 8:55 pm
Pregnancy and lyphoedema

Hello I was hoping for some advice, as I find my lyphoedema nurses - although lovely - kind of difficult to get information out of.. I am very lucky in that I'm 34 weeks pregnant after being diagnosed with breast cancer almost 5 years ago at the age ...

Posted by lizalou on Wed Jan 25, 2012 4:28 pm with 7 comments

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Thanks so much for the update Helen - good luck with all that lifting! I know what you mean about exercises..I always have good intentions and then forget, and the baby isn't even here yet so no excuse! x

lizalou, Wed Feb 08, 2012 1:44 pm
Does anyone get pain from time to time in the arm with lymph

Hi All I have lymphoedema in my arm. Have had it for 3 years - I wear a sleeve on and off and it has not really changed - no worse not much better. I have just started a course of MLD for my breast lymphoedema and since then I have found that my ar...

Posted by alise on Sun Feb 05, 2012 2:29 pm with 5 comments

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And as Norberte and others have said it could that you've done too much and perhaps without the sleeve. That was another thought my nurse had. Perhaps try wearing the sleeve every day until it resolves.

elinda45, Tue Feb 07, 2012 9:50 am
Does MLD actually work???!

Hi all After a years wait I have finally got a course of MLD for breast lymphoedema. I have had 2 out of 8 sessions and can honestly say it looks no different!! It's a lot of faffing about getting there and I wondered if anyone who had had it actual...

Posted by alise on Sat Jan 28, 2012 12:35 pm with 13 comments

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norberte, obviously a wife is what one needs. I used to have one of them but she works in another town now. I must say the three weeks I spent at a lymph clinic certainly showed me how well off I am. I only have a problem with breast and trunk. There ...

Zeppa, Fri Feb 03, 2012 11:13 am
cheers to the lymphoedema gang

post deleted

Posted by norberte on Tue Jul 19, 2011 1:25 am with 60 comments

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Norberte......not just ice cream , chocolate truffles, eclairs, cake, brownies in large quantities. Washed down with the drink of your choice. Sorry the cellulitis is still with you. Cackles

Cackles, Fri Feb 03, 2012 1:44 am
Should I contact my consultant?

I'm not quite sure what to do re continuing problems with my LD arm. I had a suspected infection in my hand in the summer. I had pain in my little finger joint and mild swelling. Two courses os antibiotics and two weeks of MLD did not really help so no...

Posted by Hatts on Tue Jan 31, 2012 9:54 pm with 4 comments

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Thanks everyone. I appreciate your advice. Hope everything heals soon norberte!

Hatts, Thu Feb 02, 2012 8:29 pm
****ing *****y cellulitis

hi ld gand i've got cellulitis again - started with a patch on my arm & within a couple of hours my whole arm was pretty much covered & my temp was over 40 t'wife insisted on demanding a home visit - i was doing that chattery teeth, falling over unless...

Posted by norberte on Sat Jan 21, 2012 5:33 am with 10 comments

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thanks for the hugs, much appreciated cackles, i know you know what it's like when the lymph pools round your torso & it feels like i need to go & use the tyre inflater at the garage to break some of those barrel-bands! i'll have getting rid of all tha...

norberte, Tue Jan 31, 2012 2:18 pm
Pain in upper arm

Hi all I havn't posted for ages but could do with some feedback. I was diagnosed in 2006 lumpectomy and full lymh node clearance. Developed lymphoedema in arm about 3 1/2 years in. I;ve been wearing the sleeve and swelling is nearly all gone. Howev...

Posted by BeverleyJane on Tue Jan 24, 2012 11:00 pm with 2 comments

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hi both i can help make the mystery more mysterious: i wear sleeves on both arms but only get that funny feeling in the bicep on my right arm - dominant arm, tumour side feels a bit 'pinched nerve' like but only happens occasionally & of course one sma...

norberte, Wed Jan 25, 2012 12:31 am
Lymphoedema and mammograms

Hi All I went for my annual mammogram today AaaaaaaaaaaaH! Anyway I had my last one in January last year and then two months later in teh March I got breast lymphoedema. I am now sat here worrying to death that this years mammo will look different to...

Posted by alise on Mon Jan 16, 2012 8:00 pm with 8 comments

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well done tha woman! & i hopr you enjoy the mld - it's vvery relaxing, & the feeling afterwards of not carrying loads of lymph around is fantastic

norberte, Sat Jan 21, 2012 5:02 am
lymphoedema & steroids

hi all has anyone else had to take steroids? i've got to take a 3 month course of budesonide & adcal, & i can apparently expect to blow up like a balloon as well as getting some acne yum! i asked the prescribing consultant about steroids & high blood p...

Posted by norberte on Fri Jan 06, 2012 2:02 pm with 14 comments

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borrowed several brain cells via a phone call from one of the bcc nurses - more to share round for whoever needs them next now, what was she sayinng about getting a good night's sleep .....??

norberte, Mon Jan 16, 2012 5:04 am
Joining the LD gang

Hi all, well, im now having to join the LD gang. i have developed mild lymphodema in my hand & wrist & my lymphoedema nurse says it's thanks to an insect bite on my wrist, why couldn't it have chosen the other damn arm! Anyway she's ordered me a glove ...

Posted by hjv123 on Sat Oct 15, 2011 4:45 pm with 20 comments

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Have PM'd u Starfish xx

hjv123, Sun Jan 15, 2012 8:53 pm
Lymohoedema

Hi All I have been to see my GP and he says that i have mild lymohoedema I have rung my BCN who said ring my GP back and ask to be refered to the Lymohoedema nurse In the meantime i was wondering if any one has any advice on any thing i could do to he...

Posted by perita on Mon Jan 09, 2012 3:11 pm with 8 comments

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..just to add, I bought myself some 'arm hosiery' by Charnos (like a pair of tights that cover your arms and link around your back), from Mary Portas on the House of Fraser website. I bought a black lacy pair which means I can still wear a sleeveless ...

Annie22, Fri Jan 13, 2012 6:10 pm
Not sure if this is Lymphoedema

Hi All! I'm new to this site and could use some friendly advice. I had breast cancer in July 2010, which resulted in me having a wide excision lumpectomy/23 lymph nodes removed and radiotherapy. On and off I have been experiencing swelling to the af...

Posted by mrgiraffe on Sun Jan 08, 2012 8:04 pm with 4 comments

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hi mrgiraffe i agree that stamping your feet needs doing - how can it be 'ok' to have all that going on without any explanation?? assuming you consultant & gp are men, ask them how they'd feel if their testicles were playing up like that & thye just go...

norberte, Mon Jan 09, 2012 5:11 pm
Lymphoedema and my hand???

Hi, I'm hoping someone can give me some advice to stop me worrying over nothing. I noticed between my thumb and forefinger I was experiencing a tingly feeling and a little bit of tenderness. I also think it looks slightly swollen in that area, just s...

Posted by katytc on Wed Jan 04, 2012 6:00 pm with 23 comments

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Hi Annie, Thank you for your advice, I didn't know that either, that is why this forum is invaluable. Just going to wait until I see BCN because it may be absolutely nothing to do with lymphoedema. Thanks again for your warning xx

katytc, Mon Jan 09, 2012 8:47 am
Breast swollen

For the past few days my right breast ( the one that had the cancer) has been swelling up. Now it is noticeable bigger than the other one.It is not hot or painful. Is this lymphodoema or could it be something else? I am away on holiday in Australia. I ...

Posted by ladysue on Sat Jan 07, 2012 1:32 am with 5 comments

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THank you all for your comments. It is the whole breast that is swollen and so I guess, from what you have all said, that it is lymphodoema. I will see if I can get a sports bra while I am over here as I may need something tight to wear on the flight h...

ladysue, Sun Jan 08, 2012 11:13 am
Lymphoedema both arms :( advice please

Hi Anyone, I was today fitted with a sleeve to one arm & a sleeve with glove to other arm, dont really understand the whole Ld thing but the arm that is more swollen i was told 24 % can anyone tell me what this percentage means. Also the sleeves are ...

Posted by 021210 on Thu Jan 05, 2012 8:04 pm with 12 comments

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hi sarah i'm glad you've got the mld sorted, & the clot in your neck's sorted too - that sounds pretty horrible i do my sld down to my groin - all they're doing is enccourging the lymph to flow towards nodes that are still working, doesn't really matte...

norberte, Sat Jan 07, 2012 6:48 pm
lymohoedema braclet

Hi I am half way through my chemo. Got an infetion a week after my 3rd session of FEC T. Was taken to A&E. The doctor came round and struggled to get blood. He was going round to my operation arm and I stopped him. He asked me why so I told him. In he...

Posted by Tomsmam on Mon Dec 26, 2011 5:53 pm with 4 comments

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Hi I just ordered a heart charm from Theidbandco as I have a portacath fitted. I had it engraved appropriately and it is fitted with a lobster clasp so that I can attach it to any bracelet or necklace that I am wearing that day. It can also be attac...

Mazzalou, Tue Dec 27, 2011 9:54 am
cellulitus again .!

am about to have my arm bandaged after another bout of cellulitus and its not as if i have hurt the affected arm either ,im getting so fed up of this ,anyone got anytips as to how i can stop this occuring ,im really careful with my arm and wear my slee...

Posted by aroma on Fri Oct 07, 2011 11:29 am with 6 comments

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Thanks norberte. I write this in hospital after op this afternoon to remove portacath. I'll be in over christmas. the problem? I didn't and never have had lymphodema - I had a blood clot under the arm right up to around the portacath, but presentin...

Annie22, Thu Dec 22, 2011 8:13 pm
Knitting and lymphoedema

Hi I was DX with mild LD earlier this year and with the help of a compression sleeve , massage and advice from all you lovely ladies , for the moment it seems to be under control. My question is - my daughter has asked whether I could help her knit s...

Posted by AndieT on Wed Dec 14, 2011 3:03 pm with 8 comments

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Hi I have had lymphodema since Dec 08 and do a lot of knitting. Havent really noticed that it makes things worse. If anything I think it helps. Cross stitch is even better for anyone who would like to try that. The slow stitching motion seems parti...

starfish, Sat Dec 17, 2011 6:33 pm
good news story re lymphodema

I thought I'd post this as it might be helpful for anyone recently diagnosed or really worried about lymphodema. I was diagnosed with lymphodema in my left arm a year ago. It was mild but nevertheless I had to wear a compression sleeve every day, do ...

Posted by elinda45 on Tue Dec 13, 2011 9:49 am with 12 comments

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http://www.nwlymphedemacenter.org/vid_mngmntA.php scroll down to below the first video window and choose Demo 1 and Demo 2 My nurse gave me it in small bits too, I some times felt I had to drag it out of them after having gone online and found out fo...

hymil, Thu Dec 15, 2011 12:41 am
rib swelling -confused any advice please

Hi all I have had a slight 'puffy' type swelling for about 1 year just under boob on rib cage it goes from under boob to the middle chest.had 5 year check back in august and 'signed off' from them -mentioned it to them and said although not painful jus...

Posted by wizardpoo on Wed Dec 14, 2011 10:19 pm with 2 comments

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thanks for that cackles. I'm not concerned that it is anything directly bc connected really, just more puzzling than anything-unpleasant sensation bit achy thats all-feel a bit of a fraud mentioning it when others have it severely..Maybe i will see if ...

wizardpoo, Thu Dec 15, 2011 12:04 am
repeated swelling-advice please

Hi, I've had mild lympho for about 3 years which is well controlled with a glove and sleeve. Recently my hand became very swollen caused, I think, by overdoing things at work. The swelling went down after a week or so and then a couple of days later my...

Posted by littlemrs on Sat Dec 10, 2011 8:01 pm with 2 comments

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Hi littlemrs You may already have the BCC lymphoedema publication, here's the link in case there is any further info in there for you, you are also welcome to call our helpliners as they may be able to offer you some ideas: http://www2.breastcancerca...

Lucy BCC, Sat Dec 10, 2011 10:04 pm
Lymphoedema and writing

Anyone else find writing a tough one?? I wear my sleeve and currently there is very little swelling in the arm, but I still find that writing even for a few minutes makes my arm ache and tingle. I have just returned to work and discovered this new is...

Posted by Manny on Tue Oct 18, 2011 9:58 am with 11 comments

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"Handwriting, yes it's definitely a scrawl now , I think it's cos I've been mixing with all these medical staff to long :)" LOL!! Exercise can help a lot, it helps you to breathe deeply, and that gets the fluid in the final largest lymph vessel in yo...

hymil, Thu Dec 08, 2011 12:46 am
Lymphodemia n is it an infection??

Hi all I cud do with sum advice. Iv had lymphodemia in my breast for a few months but just recently my arm has been swelling Today my arm is uncomfortable heavy n th most swollen it's been spoke t my lymphodemia nurse only see her once a month now....

Posted by rozita on Thu Dec 01, 2011 7:21 pm with 3 comments

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Thnx sue no I havnt gone its not red or hot do guess it's just gone to my armnowas well but was quite quick. Not too great with Xmas dresses will hav t see what happens Rozita

rozita, Fri Dec 02, 2011 5:42 pm

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