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help!

I found a lump in my "poorly" boob on friday, just been for mammo today and had 3 biopsies, Just finished my chemo and radiotherapy in September and didnt expect to be here again, how common is this, any help would be appreciated. Jo x

Posted by darlojo on Tue Jan 24, 2012 6:29 pm with 33 comments

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Hi Christine, so sorry you've got this blasted thing twice too! there's no rhyme or reason why some of us get it at all never mind again. I had just been back to work 3 weeks and have gone on the sick again. Can I ask what kind of recon you had? i...

darlojo, Wed Feb 08, 2012 4:04 pm
11 years later, I'm back here

First diagnosed in December 2000, had chemo, mastectomy and radiotherapy, 5 years of Tamoxifen and finally discharged from hospital in July 2011. Two weeks ago I felt a lump above the mastectomy scar, had biopsies taken last Monday and yesterday had i...

Posted by hello on Tue Jan 24, 2012 11:15 am with 8 comments

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Wow, I hadn't realised there are so many of us out there. Thank you all so much, really has helped knowing you're all out there to 'chat' to. I'm having both CT and bone scans done this Friday so not much longer to wait. Sue

hello, Mon Jan 30, 2012 3:22 pm
Worried again

Hi All Not been on here for ages. I finished active treatment in Sept 2010 and currently just on Tamoxifen. Just had a check up today with my breast surgeon which included a mammogram. Prior to the mammogram he examined me and was concerned about a lu...

Posted by vivrog on Thu Jan 26, 2012 9:08 pm with 3 comments

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Hi Viv, Just to send my good wishes. Hope you get your results quickly! Carolyn xx

Crabbit, Fri Jan 27, 2012 6:41 pm
Anyone got a positive outcome from a recurrence?

I'm back. Nearly 5 years to the day from diagnosis and first round of treatment (surgery,chemo,rads, Tamoxifen)Had hoped that was it but it appears when I moved house and changed hospitals and consultants that an ulcerated area of tissue which was remo...

Posted by Ollie on Fri Jan 27, 2012 10:50 am with 3 comments

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Thanks for the oomments. I think this forum is going to be as useful this time round as it was last time. This tumour probably wouldn't have got picked up if I hadn't moved half way up the country and changed my consultant. The diagnosis is the same as...

Ollie, Fri Jan 27, 2012 12:50 pm
Waiting for biopsy results - have I got a recurrence?

Hi, I'd really appreciate some tips on getting thru til next Tuesday. I'm 49, I was initially diagnosed with bc 1 yr ago. There followed a slightly protracted and complicated diagnosis, leading to a bi-lat mx at the end of Jan 11. IDC and ILC, grade ...

Posted by Ninianne on Fri Nov 11, 2011 3:30 am with 21 comments

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Ultrasound isn't very useful for screening it only helps if you have somewhere to look. A Mammo, MRI or CT takes images at a certain time and shows the whole area examined.... With ultrasound it's hand held and only looks at the bits where the probe i...

Lulu34, Sun Jan 22, 2012 1:47 am
Reoccurrence with reconstruction

Hi. Just reeling with the news nearly six years after my original diagnosis that I have breast cancer again. Had several investigations into lumps in the reconstructed breast between now & then but gutted yesterday to hear my news. Got to have the whol...

Posted by Twinky68 on Sat Dec 17, 2011 11:02 am with 12 comments

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Hi all, I am due to have an MX/recon next month following a diagnosis at the beginning of Dec of high grade DCIS 3cm (towards chest wall they said at mammogram recall but I don't know how close). I was unsure about a reconstruction to start with in c...

Lemoncake, Fri Jan 20, 2012 8:29 pm
Surgery within 31 days

Does anyone know if the NHS target to carry out surgery for BC within 31 days of dx is 31 calendar days or 31 working days? Do hospitals receive a financial penalty if surgery is outside this time period? Thanks all

Posted by Lemoncake on Sun Jan 15, 2012 12:51 am with 3 comments

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Mmm you have to wonder Jeniffer! Dad wasn't on the ENT ward, he was on another ward to begin with, a general ward I believe, and when he woke up he was on a urology ward!!!! Still the next round is radio iodine treatment so no messing there, one isot...

Alibabes, Thu Jan 19, 2012 7:42 pm
Mastectomy

Hi - I have just had a mastectomy after a unsuccessful lumpectomy - in between these operations I had several nodules on my breast and a further lump near my nipple appeared. I had an appoitment with my breast consultant and oncologist yesterday and t...

Posted by Pauline1 on Tue Jan 17, 2012 7:40 pm with 2 comments

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Hi Pauline1 Welcome to the forums, I’m sorry to hear that you are having a pretty tough time at the moment. As well as the support you receive from the other users you may find it helpful to talk things through with a trained member of staff on the ...

Sam BCC, Tue Jan 17, 2012 10:07 pm
Insomnia

Hi Feel like I'm the only person in the world still awake but I'm sure I'm not. Usually pretty good at sleeping but it's starting to stop happening. All sorts of things going through my head (last weekend with two breast....weird stuff like that) so I...

Posted by Twinky68 on Sun Jan 15, 2012 2:58 am with 12 comments

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Morning Yes I slept last night, ironically without the aid of the Nytol that I had bought but the only annoying was I couldn't sleep in this morning as hubby was up early for his journey down south. I shall go for a walk today and look forward to anot...

Twinky68, Mon Jan 16, 2012 9:33 am
Reconstruction or just mastectomy

Hi everyone, has anyone got any advice for me? I was diagnosed with high grade DCIS on 13/12 and am due to have mx at the end of Jan (I haven’t been given a date yet). I am seeing a plastic surgeon next week with a view to reconstruction from my sto...

Posted by Lemoncake on Fri Jan 06, 2012 5:21 pm with 13 comments

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Hi Lemoncake, I had to wait four months for surgery because my lump was large and surgeon put me on tamoxifen first to try make it smaller and safer, my friend get chemo first for same reasons. Yes, I was clinbing the curtains with frustration (especia...

hymil, Sat Jan 14, 2012 1:39 am
Silently screaming

Hi Sorry but I need a bit of a rant at this late hour and hubby works away from home during the week (and the bunnies aren't too talkative). Mentally preparing myself for my MX next week after a local recurrence. After being DX on 16th Dec had to cope...

Posted by Twinky68 on Tue Jan 10, 2012 1:51 am with 6 comments

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Hi Twinky, So sorry for your OH, it's bad enough when you're in a large family but to be an only one must be really tough at times like this. I understand that you need to be there. You know we are here to listen when you need to rant! Axx

AnnieK68, Tue Jan 10, 2012 11:24 am
Back to work before treatment

I've got to go back to work today. Diagnosed with a recurrence on 16th Dec. Seeing my consultant this Friday when I'll find out when my MX will be scheduled for. Xmas hold have sort of messed up the diagnosis/treatment time line and gutted I have to go...

Posted by Twinky68 on Tue Jan 03, 2012 8:24 am with 12 comments

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Very impressive Twinky well done you. and very sensible to get contact details now when you're not in a tis.

ChoccieMuffin, Thu Jan 05, 2012 1:10 am
4 Years later I have a reoccurance

Hello I was diagnosed with a reoccurance after finding a lump next to my flap reconstruction last week. I had the lump removed yesterday and have staging CT and MRI tomorrow (routine I'm told). They are talking radiotherapy as I didn't have it last tim...

Posted by 1chris on Tue Dec 20, 2011 11:43 am with 8 comments

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Great news there's no spread chris... Sorry to hear about your relationship though. Me and my OH had broken up just when I was diagnosed with my recurrence but are now back together and things are much better than they were before despite the cancer. ...

Lulu34, Wed Jan 04, 2012 2:49 am
HER2 recurrence

Hi there has anyone had a recurrence of her2 breast cancer. I was diagnosed in 2005, had 1st recurrence in 2010 and am now waiting for results on biopsy for 2nd recurrence. I only finished herceptin 3 weeks ago so it hasnt worked for me. I just dont kn...

Posted by sunrise13 on Thu Oct 13, 2011 7:14 pm with 13 comments

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hi sunrise13, please to hear you had good news my nodules were removed and quite a bit of skin but did not need anymore treatment because my onc said that i am cancer free so thats brill news for me.hope you are ok. x

lollypop59, Tue Jan 03, 2012 10:05 pm
New recurrence - Help!

Hi everyone, I've not finished my treatment for my diagnosis of bc and it's already recurred on my mx scar. I've had chemo and rads and I'm just over half way with Herceptin. I had a staging CT on wednesday. Best case would be that this is just a lo...

Posted by Annie81 on Fri Jun 18, 2010 12:35 pm with 12 comments

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hi i had a local reccurance while still on herceptin i had three left to go, i did have to cancel my holiday because of this, at the time my surgeon said that i will have to chemo more treatment, i had these four dodules removed on my reconstruction bo...

lollypop59, Thu Dec 22, 2011 1:24 pm
Treatment decisions - Help!

Hi, I am looking for some support/advice on the situation I now find myself in! Last Feb I found a lump in my neck (after being five years clear of DCIS and 5mm invasive had double mastectomy and rads and tamoxifen). I was found to have four nodes in ...

Posted by abbey on Tue Oct 18, 2011 10:20 pm with 7 comments

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Abbey glad your through your op.... Sounds like a bit of a Marathon but I'm sure you will get lots of benefit from the surgery now all the nasties have been removed. Good luck with your appt so morrow and hope you do get that drain out for Xmas. Merr...

Lulu34, Thu Dec 22, 2011 1:42 am
Regional recurrence in sternum

Hello, I was diagnosed in 2003 and had a regional recurrence in the sternum in 2006 which was treated successfully with rads. Now, 5 years later, my routine annual CT scan has picked up progression in the site of the recurrence. I've had a bone scan w...

Posted by Angelfalls on Thu Oct 27, 2011 11:20 pm with 19 comments

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Well, I got the results of the PET scan yesterday - the final hurdle on the road to a referral for a sternectomy - and the news wasn't what I was hoping for: my internal mammary lymph nodes are affected right the way up to my neck, I have a couple of t...

Angelfalls, Thu Dec 22, 2011 1:24 am
Terrified of recurrance

I have today found a really small lump about an inch from my scar and am terrified that it is a recurrence - it doesnt help that I had to stop rads after 2 sessions and it is now nearly 4 months since my surgery. Spoke to the BCN today and I have a pla...

Posted by annew272 on Wed Nov 23, 2011 7:57 pm with 18 comments

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Hi, I have just been through something similar. Original cancer in left breast and after a routine mamo was recalled. It turns out that I have micro califications on my right side. At my most recent mamo they thought there had been some changes in the ...

DollyMolly, Mon Dec 19, 2011 8:22 pm
second primary breast cancer

Today I was told that I have Invasive Ductal Breast Cancer grade 3 in my left breadst, 7 years after having a mastectomy to remove a large tumour in the right breast. I've been told that this is a second primary breast cancer nothing to do with the fir...

Posted by cassandra65 on Tue Nov 01, 2011 8:15 pm with 12 comments

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Having been told that the BC had not spread, after the op they found it in 2 limph nodes so I've had to have chemotherapy which started off not too badly and I thought I can cope with this. However a few days later I became really ill and ended up in h...

cassandra65, Mon Dec 19, 2011 8:11 pm
2nd time around

i had breast cancer 12 years ago treated with op and radiation. recently been diagnosed with cancer again in the same breast and now need a mascetomy. i am now 70 and due for my operation next week. i am entitled to any benefits or help to costs of ...

Posted by gingerkey on Tue Nov 08, 2011 1:01 am with 1 comments

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Gingerkey, if your breast clinic has any breast care nurses they can help with things like benefit forms. I would also advise you to contact Macmillan Cancer as they are excellent and have benefits advisors. I wasn't entitled to Incapacity Benefit or D...

cherub, Sat Dec 03, 2011 9:42 pm
Suspicious spot on posterior rib - any advice please.

Hiya, it would seem that I should have been worrying a little more than I have been about the bone scan that I had today rather than when my radiotherapy and hormone therapy was going to start (for a local recurrence at the original site). The only t...

Posted by naomifel on Wed Sep 21, 2011 4:10 pm with 4 comments

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Thank you, Dot, Sam. As always, I'm still feeling a little unclear! We didn't talk through the results of my latest bone scan but they did say that they would compare this one with my earlier scan in 2009/10. I was surprised that they hadn't already d...

naomifel, Mon Nov 14, 2011 8:54 pm
Triple negative treatment

As a background, I had a full hyterectomy in 1995 and have been on HRT ever since.Diagnosed with Invasive ductal carcanoma last month (only .9 cm) however, cluster of smaller lumps evident, so decided on total mastectomy. Also biopsy showed lymph nodes...

Posted by wendya on Thu Nov 10, 2011 7:26 pm with 6 comments

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I had wle before Chemo in 2009 and had made an appt to see my consultant about going on hrt this summer bu was diagnosed with a recurrence in chest wall before we got a chance to speak about it so never got the hrt... I had a hyst and bso last year as ...

Lulu34, Fri Nov 11, 2011 1:07 am
Triple negative

Hi i was diagnosed last yr with breast cancer,had lump removed no nodes effected had chemo, radiotherapy, unfortunately it has come back as grade 4 and been told its in ,lymph nodes and on chest wall.. Was also told its incurable restart chemo on Friday x

Posted by whitefeather on Tue Oct 18, 2011 10:09 pm with 13 comments

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wilsong not sure why they are putting you through the trauma of tumour markers... they arent very effective indicator of cancer unless you have known secondaries where is can monitor better... but if you were node negative the its not really much ben...

Lulu34, Fri Oct 28, 2011 8:29 pm
how do I decide on treatment options?

I was diagnosed 30months ago with grade 2 ductal carcinoma. I had chemotherapy (FEC) followed by surgery (partial mastectomy with latissimus dorsi flap reconstruction and lymph node removal, - not an operation I would recommend) and radiotherapy. As ...

Posted by janella on Sat Oct 15, 2011 3:36 pm with 6 comments

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Thanks to all for your comments. I am busy talking to everyone and gathering information. It is generally pushing me in the direction of chemo, although it seems this only gives me another 5% advantage. I shall take up the suggestion of phoning the ...

janella, Tue Oct 18, 2011 5:00 pm
Two years on, now new primary in other breast!!!!

Morning Ladies I have been a member of this site since my original BC two years ago, I have followed discussions and found alot of comfort, however I have not posted often as I found it quite hard to talk during my last treatment, I ended up very very ...

Posted by iamok on Fri Jun 03, 2011 8:19 am with 34 comments

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hi lulu my scan was fine no spread anywhere else, having my mx removed next wed, at to cancel my holiday until jan, what bummer never mind eh how are you doing. x

lollypop59, Fri Oct 14, 2011 8:39 pm

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