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Call for stories/quotes: women diagnosed at age 65 or over

Posted by Mike BCC on Tue Jun 14, 2011 10:17 am with 0 comments

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The policy and campaigns team at Breast Cancer Care is currently putting together a policy briefing on women of 65 or over and breast cancer. This will summarise research evidence about key issues facing women at this age and their experiences of breas...

Mike BCC, Tue Jun 14, 2011 10:17 am
Moving Forward Programme - Glasgow

The first Moving Forward programme in Glasgow is starting on 26th January 2012. The NHS and Breast Cancer Care are working together to provide a programme of information and support for people as they move forward after treatment for breast cancer. Thi...

Posted by Jo BCC on Mon Dec 12, 2011 3:59 pm with 1 comments

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Thanks Jo, Much as I'd love to come, I work full time so can't make it (plus may be having symmetry surgery around then anyway) but it's great to see this offered up here. I have added a note on the Glasgow/Ayrshire thread, and editted your title to s...

RevCat, Mon Dec 12, 2011 4:27 pm
RE: Finishing Tamoxifen

Dear breasts sufferers, Next week, I am facing my 5 years oncologist review. Needless to say I am absolutely terrified. A whole new lot of new uncertainties are added to the current ones. Over the years, If I have found increasingly difficult dealing...

Posted by happynipple on Wed Feb 08, 2012 11:54 pm with 3 comments

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Hello ladies, First of all, thank you for your support, it means a lot to me. Sam, with hormone positive cancer, the likelihood of recurrence is not in the sort run. It not unusual to have metastatic recurrence many years after the first dx. Yes Chi...

happynipple, Sat Feb 11, 2012 5:26 pm
Up all nighters..........

Ohhhhhhhhh its nearly 5am......I think I'm in the wrong slot, I'm usually lurking around at 3. I was going to pop over to BENCHLAND but I see most people have nodded off and hogging the best benches in preparation for tomorrow ( like towls on the good ...

Posted by potmaid on Wed Jan 18, 2012 5:59 am with 141 comments

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I was awake last night but head was a bit addled from the piriton and hydrocortisone and lack of Internet in the bedroom.... But yay!!! Last chemo been done and now just waiting for the SEs to kick in. Hope your all getting a better sleep tonight Lo...

Lulu34, Sat Feb 11, 2012 12:53 am
body adhesive for slipping prosthesis

My partial silicone prosthesis that is meant to be slipped inside my bra ( not into the pocket ) to be next to skin, is managing to slip out of place and into the visibility zone! My bra is fitting close but the shell prosthesis still slips. Have googl...

Posted by wendy52 on Fri Feb 10, 2012 5:46 am with 2 comments

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Wendy 52 I know Anita do breast forms which have adhesive pads.. Perhaps you can just buy a few of the pads separately. Amoena used to do contact partial prosthesis but they are not good soon after radiotherapy. You could try the Helpline and see what ...

Cackles, Sat Feb 11, 2012 12:39 am
moving on

when i was newly diagnosed i was so grateful for everyones help-you really helped me so much.as i've progressed i come on the forums and give as much help as i can to other worried posters-but i've realized that for my sanity i have to move on-my mam h...

Posted by ethlydsyl on Thu Feb 09, 2012 1:03 am with 1 comments

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Hi Ethyldsyl, I don't think we've 'chatted' on here but I have read many of your posts and know that many have appreciated your input to the forums. Moving on is a very personal thing, and I'm glad you now feel this is right for you. You might, if ...

RevCat, Thu Feb 09, 2012 8:30 am
chemo, tamoxifen, sleep, sex and all that jazz......

You know, the stuff we are not meant to talk about.....or rather just hint at or talk in hushed tones or put tmi and blush! Well I want to start a frank discussion here coz I don't thnk we get enough info! We are processed through the tube of finding...

Posted by lostinfrance on Thu Mar 31, 2011 10:02 am with 188 comments

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Hi Choccie My thoughts exactly - but it is one of those very difficult choices to make. Strange that yes, I seem to have made the decision that I will still have the odd demon drink without such deliberations, but putting actual estrogen back in seems...

sheil, Wed Feb 08, 2012 11:03 pm
Poetry thread

I am not convinced that this isn't a naff, embarrassing idea but have decided that if it does turn out to be like that I will just hide myself away under a (big) rock for ever more......:-) I find it helpful to express my feelings about my breast canc...

Posted by tors on Wed Jul 06, 2011 12:23 pm with 110 comments

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Poetry is a great way of getting the feelings off your chest (notice I didn't say breasts) how about............. My breast were there, a source of pleasure and now I feel I cannot treasure the one that has gone to pot been messed up and mangled but ...

FionaMaria, Mon Feb 06, 2012 9:58 pm
Fashion, Clothes, Campaign to Get Retailers to Cater To Us!

Hello all, A few months back I asked for help on a project to get retailers to help us with the various problems caused by bc surgery and treatement, in finding decent,confidence-giving clothes. My friend Libby has now made this short documentary featu...

Posted by bubbletrouble on Sat Jan 21, 2012 12:03 am with 12 comments

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So glad it's not just me. How can the price of mastectomy clothing possibly be justified?? £20 minimum for a simple strappy top / cami, just because it has pockets?? Come on, people, that can't be right...

Jen-the-Wren, Mon Feb 06, 2012 7:43 pm
Horse riding and lymphodema

I'm just wondering if anyone else has been told they won't be able to muck out and horse ridie after a mascestomy and lymph node removal due to lymphodema risk? Obviously my main concern is my health but my horses have been a massive part of my life an...

Posted by Danica on Fri Feb 03, 2012 11:28 pm with 5 comments

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My two horses(and dogs) have helped me so much during treatment. Riding during chemo. got me out of the house when I felt really miserable and ill - good therapy! Also walking the dogs. Danica - do hope you can carry on riding. Sounds like others do,...

jiggyjoo, Sun Feb 05, 2012 12:15 pm
NHS-Summary Care Record - your emergency care summary

Received this document in the post today stating that the NHS in England is introducing the Summary Care Record which will be used in Emergency care & will contain information about medicines, allergies and adverse reaction, it gives the option to opt ...

Posted by Tina46 on Sat Feb 04, 2012 2:59 pm with 3 comments

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I got a letter last year and decided to opt out. I know exactly what I'm on and don't need any Tom Dick and Harriett viewing my details willy-nilly.

Jeniffer, Sat Feb 04, 2012 9:46 pm
Spoon Theory - Or How Not To Feel Guilty About Energy Limits

I, and others before me, have posted a link to one of the many accounts of 'spoon theory' that is to be found on the web. It was introduced to me by a young woman who has a rare genetic condition, one symptom of which is fatigue. It helped me to unde...

Posted by RevCat on Tue Jan 17, 2012 1:15 pm with 34 comments

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I explained the spoon theory to my colleagues, who now ask me if I have enough spoons to do x, y or Z..... brilliant.... and it SO helps me to think about it being "outside me" not my failure.... and somehow, some days, I KNOW I've only got a couple o...

GIJaneH, Sat Feb 04, 2012 4:15 pm
Photoshoot

Our marketing team is looking for people who have experienced breast cancer to take part in a photo shoot. The shoot will take place on Tuesday 14 February or Tuesday 21 February in central London. We’d especially welcome Black and Asian volunteers, a...

Posted by Sam BCC on Fri Feb 03, 2012 5:50 pm with 7 comments

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Hey Welshgirl dullard you are NOT... You could: 1) Blame the chemo brain or whatever treatment you had brain 2) Blame the computer software for not doing what you tell it to 3) Blame the weather 4) Blame all of the above, which would be my choice. Ho...

RevCat, Sat Feb 04, 2012 2:57 pm
Grade 2 - what does it really mean?

Hiya :) There is a little discussion on another thread re whether to have chemo or not as some of us seem to get the option. I noticed on this trhead that a lot of people had no chemo that they were grade 2. I'm a grade 2 but I assume because of its...

Posted by 3network3 on Tue Jan 31, 2012 12:54 pm with 8 comments

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Cherub grade basically is how aggressive or not the cancer is and stage is how far is spread... There are 3 grades.... 1, 2 and 3 and as the ther have said grade 1 is most like normal cells and grade three is least like normal cells... Grade 1 is slowe...

Lulu34, Fri Feb 03, 2012 3:54 am
Other people looking at results when they shudn't

Hi I really felt quite upset by this but now I'm angry. I had a mx 2 1/2 years ago and had an implant reconstruction with a small implant put into good side to even things up ( at PS's recommendation). I have never discussed this with anyone not even m...

Posted by Wilson 52 on Tue Jan 17, 2012 8:47 pm with 20 comments

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It was a long time ago now, back in the summer of 2007. I also had another agency nurse when I was in hospital having my lymph nodes removed. She was working on the Sunday, I was waiting for discharge the following day. When she checked my drainage bot...

cherub, Wed Feb 01, 2012 6:56 pm
Inspirations - thoughts and favourite quotations

I thought I'd start an "inspirations" thread for those of us who aren't of a religious mindset (though they are quite welcome here too, of course.) There are so many inspirational quotations, as well as our own thoughts, which can be a candle in the da...

Posted by Susanne A on Mon Aug 09, 2010 9:27 pm with 82 comments

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Hi DJ I just love Oscars quotes and that's-also a favourite of mine ... Temptation!

Magda, Wed Feb 01, 2012 12:08 pm
book club

hi all the lovely ladies on 'starting chemo tomorrow (april)' made a great suggestio about sharing good books. i thought this was fab so i started it here (hope you dont mind ladies). my last read: 'But Can You Drink The Water?'. Set in the 80s a l...

Posted by staycalmandcarryon on Tue Apr 19, 2011 2:40 pm with 125 comments

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That's brilliant Dawn I am the same too. I miss reading and have so many to read I am going to try again today. Hope I have a bit if look. Best wishes to everyone x

silverjill6666, Wed Feb 01, 2012 7:25 am
Breastfeeding and BC

Not sure if this is the right place for this but here is my concern - I was Dx with BC in november. My girls are 3 and 4 and i breastfed them both. If the cancer was there for some time before it was found is there any risk that they could have been p...

Posted by Goosey on Sun Jan 29, 2012 11:44 pm with 1 comments

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Hi Goosey I noticed that you have not had any replies to your question on breast feeding and breast cancer and thought you may like to talk to a member of our helpline staff to see if they can offer any information. The free phone number is 0808 800 ...

June BCC, Mon Jan 30, 2012 4:36 pm
worrried after 6 month check up

hi all,had app.with my consultant thurs for routine check up. just the normal breast exam etc.sorry, should say i was dx march last year.IDC, 18 mm, no node involvement,er pos. 25 rads and the lovely tamoxifen.she had a good feel of breast and lymph, ...

Posted by mummysboob on Sat Jan 28, 2012 3:15 pm with 9 comments

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thanks ladies for ur input. got a really bad feeling bout it but trying very hard to be positive alex xxx

mummysboob, Sun Jan 29, 2012 7:29 pm
Underwired Bra's?

Having been through the horrid journey of Mx, chemo, Rads and recently had a DIEP/TRAM reconstruction I was wondering if anyone had views on underwired Bra's. When i saw my consultant (PS) on Tuesday now 8 weeks after my reconstruction he told me I co...

Posted by saffronseed on Fri Jan 27, 2012 10:57 am with 4 comments

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Hi ladies, I had a DIEP reconstruction on 10th November. I met with the plastic surgeon last week and was told I could go back to wearing normal bras - no mention of underwires and I didn't think to ask. I was just so relieved for a bit of normality! I...

clare83, Fri Jan 27, 2012 5:23 pm
Swdish Massage - OK to do?

If there is a silly question this one must be it ... I'm just stiff and tense round my shoulders and there is a girl who does house calls and does neck and shoulder massage and I was fancying that since months, before DX. Still would love to have one,...

Posted by 3network3 on Thu Jan 26, 2012 5:24 pm with 11 comments

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I too would say check with your onc and nurses first as opinion varies enormously. However, this has been my experience if it helps. I have bone secondaries and lymphoedema in one arm and up into my shoulder/neck area. Having had lymphatic massage whe...

lizcat, Fri Jan 27, 2012 4:57 pm
Reading suggestions?

I have noticed quite a few references to books that different people have read which they have found useful, inspiring, etc ... and as i am at the start of my chemo and then rads journey have time to actually read - normally never seemed too - always ...

Posted by Goosey on Fri Jan 20, 2012 10:19 pm with 20 comments

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Hi Supertrouper I managed to get hold of a copy of the TV movie 'Lipstick' based on the true story book 'Why I Wore Lipstick: To My Mastectomy' [Paperback]by Geralyn Lucas ISBN-13: 978-0312334468 and I have just finished watching it. I thoroughly rec...

Mazzalou, Thu Jan 26, 2012 2:06 am
Nw York - need Travel Insurance!

Hi I'm after some guidance please. I was diagnosed in May 2009, then had a double MX in 2010. I am still having follow-up surgery on my reconstruction. I am going to New York for a long weekend soon so have started shopping around for travel insura...

Posted by she on Tue Jan 24, 2012 12:09 pm with 5 comments

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Hi She Later in March. I'm also celebrating a big birthday, but 10 years more than you :-( However, since my secondaries dx 4 years ago I'm glad to celebrate every birthday :-) Nicky x

nicky08, Tue Jan 24, 2012 6:28 pm
"Fashion's Latest Victims" (Clothes After Surgery)

Some of you may recall this thread from summer 2011 http://share.breastcancercare.org.uk/forum/your-input-wanted%C7%83-fashionable-clothes-for-women-with-bc-t33646.html I was one of those privileged to be invited to take part in the filming of a short...

Posted by RevCat on Fri Jan 20, 2012 5:28 pm with 20 comments

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I found secret support vests or camisoles a godsend when I was having radiotherapy because after the first few treatments they told me to stop wearing a bra. Back in 2007 the ones I had were from Dunnes Stores and were actually made from t-shirt materi...

cherub, Sun Jan 22, 2012 5:12 pm
Restless legs- any tips?

Hi Guys... I have been looking through the forum to see if anyone else has this problem? I cannot see it, although I may have missed it, but thought I would see if anyone has any top tips? I finished chemo in Oct 11 and had a MX Nov 11. I am now on t...

Posted by ChampagneDreams on Fri Jan 20, 2012 7:42 pm with 6 comments

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Ooh that sounds worth a try - thank you :)is natural enough not to do any harm and if it works it will be great xx

ChampagneDreams, Sun Jan 22, 2012 1:01 am
Your Input Wanted! Fashionable Clothes For Women with BC

Hi all, Having had bilateral mx I've encountered problems with finding fashionable clothes. Particular issues for me have included hiding scarring, having the option of not wearing a bra and breast forms without making it glaringly obvious that I'm boo...

Posted by bubbletrouble on Fri Sep 16, 2011 1:04 pm with 47 comments

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Chinook, this is a big issue isn't it, you often find you are just looking at things for comfort more than anything else. I've never had lymphodoema problems (touch wood), but my left arm is always slightly thicker than the right. I have a cupboard ful...

cherub, Sat Jan 21, 2012 7:45 pm

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