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My Mum

My mum was diagnosed with breast cancer today. I am completely petrified. I have a husband and a beautiful 8 year old son who I have decided to temporarily keep in the dark, just until I know more. My Husband is incredibly suportive and my brothers ...

Posted by emmaays on Mon Feb 06, 2012 8:44 pm with 4 comments

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hi Emma It is a shock when your mum develops BC.... I was 36 and my mum was 57 when she was diagnosed with BC..... About a year later I got diagnosed at 37 then in the other breast at 40 and then a recurrence at 43.... I think I was probably a bit mor...

Lulu34, Sat Feb 11, 2012 2:45 am
I am BRCA 1, Now what do I do?!

Hi there, I was recommended this site by a friend. I find it hard to get my head round my situation and think about it very clinically. I can't really talk to anyone about how I really feel as it upsets myself and others too much. Having lost my Gre...

Posted by lozzy2b on Mon Jan 23, 2012 2:50 pm with 15 comments

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I know when I was waiting to be tested and had asked to have a bilateral mx after 1 was diagnosed with the second BC in the opposite side and my surgeon was more keen to treat the cancer as that was the immediate concern. He said he could do the bilate...

Lulu34, Sat Feb 11, 2012 2:18 am
Genetic testing

Hello, I have had breast cancer and have had a masectomy and just completed a course of chemotherapy. During an appointment with the reconstruction consultant she questioned why I had been genetically tested. I have now looked into this and have an a...

Posted by Stickytoffee on Fri Feb 10, 2012 10:30 am with 4 comments

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Hi sticky toffee They want your family history so they can look and see if there is a likely hood that you may have a genetic cancer. First of all starting with yourself.... Most people do not fit the criteria for testing but you must have certain at...

Lulu34, Fri Feb 10, 2012 10:45 pm
A beginner's guide to BRCA1 & 2 - Royal Marsden

Hi, I found this booklet from the Royal Marsden, and thought I would share it. The link is to a page with a few questions to answer, simple ones such as why are you interested etc, it then puts you through to a page where you can download the booklet...

Posted by squeak on Sun Feb 05, 2012 8:05 pm with 2 comments

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Thank you. That is really helpful x

Pocahontas , Mon Feb 06, 2012 10:58 pm
PGD

Hi All, We have our first PGD appointment at Guys this month! Has anyone been through this process? Thanks, Loz

Posted by lozzy2b on Sun Feb 05, 2012 8:36 pm with 4 comments

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Thank you :) x

lozzy2b, Mon Feb 06, 2012 7:42 pm
New to site - Just found out I'm Brca 2

Hi all What comfort this has just given me in only a few moments...I'm really not the only one out there. I am 32yrs I am happily married with 2 boys (5 & 2yrs). We have a history of breast cancer in our family. My grandmother died when she was 3...

Posted by Mostly on Thu Jan 26, 2012 9:35 pm with 12 comments

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It is very interesting.... I have a few families on my books who have a gene mutation and somebody of the ones who are affected by cancer still test negative.... Sporadic cancers can still occur in families with mutations too. Think I'll have a look a...

Lulu34, Mon Jan 30, 2012 3:27 am
Question Re: BRCA1/BRCA2 Test

Hi all. I have a strong family history of breast cancer on my mother's side (my mother and 2 of her sisters have had it). However, the consultant at the genetics department in my local hospital has told me that I don't need a test for the BRCA1/BRCA2...

Posted by bcquestion on Sun Nov 20, 2011 12:44 pm with 12 comments

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Hi Ladies It does seem to take some time. Our family have been 20 yrs in genetics! Finally 6 months ago we had a breakthrough. It was confirmed that the 'spelling mistake' in the Brca 2 gene was causing cancer in our family. My mother and her two ...

Mostly, Thu Jan 26, 2012 10:07 pm
Just wanted to say Hi & what order for surgery?

Hi there. I've just signed up for this site, as recommended by the MacMillan Counsellor. I'm 37, and have recently been tested positive for the BRCA2 mutation. My mother had breast cancer aged 50, and is absolutely fine now at 72. She was tested las...

Posted by DinkyDoo on Mon Nov 28, 2011 6:11 pm with 10 comments

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Hi DD I'm new to this and just done my first posting but saw your comment and thought I'd share. I've got Brca 2 and I'm 33. Like you I lost my grandmother when she was 34yrs (I of course never knew her). Due to the age of women in my family gettin...

Mostly, Thu Jan 26, 2012 9:49 pm
BRCA 1 info on increased risk

Hi, I have just found out that I have a BRCA 1 mutation. I was diagnosed in September 2010 at age 34. My dad's half sister died at 41 after being diagnosed with ovarian cancer at 37. There are no other incidences of breast or ovarian cancer in the fam...

Posted by squeak on Fri Jan 20, 2012 10:12 pm with 5 comments

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TTM Sorry I didn't see your post about testing criteria..... If nobody else in the family has BC then you can be tested if you are diagnosed under 40 with TNBC like Jen, or if you have both breast and ovarian ca. There is a research trial called the g...

Lulu34, Sat Jan 21, 2012 5:43 pm
my mastectomy after braca 2 results,feel great!

hello ladies, i am 47, had breast cancer 2 years ago, had a wle and node removal, had 6 cycles of chemo, had 20 rads and am taking arimidex. My mum and other relatives had breast cancer by the age of 45, my mum had it twice, she had it at 42, then aga...

Posted by nanny4 on Sat Jan 07, 2012 3:00 pm with 7 comments

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I had the genetic testing done and it was found that I had a 'variant' gene on the Braca 2 strand. My cousin who also has had bc 2 years ago with exactly same diagnoses - multi focal - 100 % ER + (seems a bit of a coincidence) and her Mum had ovaria...

LancsLass, Wed Jan 18, 2012 9:09 am
Worried Daughter

I was dx end Nov and will have my mx and recon at the end of this week. My 16 year old daughter is petrified she will get bc even though it has never been in the family until me. She now thinks she has a lump under her armpit, which I can't feel. I hav...

Posted by lelly61 on Mon Jan 09, 2012 12:24 am with 7 comments

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Many thanks Stella. I saw info on another thread about possible support at school so have spoken to her head of year who is being very supportive. The exams officer has also agreed to talk to the exam boards so that is a great relief, even if they can'...

lelly61, Wed Jan 11, 2012 1:04 pm
Results of BRCA 1 & 2 test

Hi, I've just recently had a blood test for the above and have an appointment at the end of January, presumably to discuss results. Can I assume that because it's until the end of January, that the result was negative and that I do not have the gene mu...

Posted by naomifel on Mon Nov 28, 2011 11:13 pm with 24 comments

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Thanks again lulu, you have been very helpful. Kate Xx

bigbirdkate, Wed Dec 14, 2011 8:10 am
Strattice -please help

Hi I am really worried, I posted in reconstructive surgery but have had no replies so i thought I would come back here where I have had so much friendly advice. I had a prophylactic double mx 5 weeks ago with strattice reconstruction and an implant. A...

Posted by Strawberry Shortcake on Sat Dec 03, 2011 9:56 am with 12 comments

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Hi CrystalT, Thanks for your reply too. I saw my surgeon today. He is happy with things. He says he is only concerned if I start to get ill or have pain. He has asked me to take my temp twice daily to monitor this and then just give it time. My next a...

Strawberry Shortcake, Wed Dec 07, 2011 5:31 pm
BRCA1 and Bupa - will they accept her?

I am a BRCA1 carrier, I have had BC and also risk reducing surgery. My daughter is thinking of having a test to see if she too is a BRCA1 carrier. She can join a bupa scheme at work, and I wonder if she should do this before discussing genetic conditio...

Posted by CrystalT on Wed Dec 07, 2011 8:34 am with 1 comments

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http://www.google.co.uk/#sclient=psy-ab&hl=en&source=hp&q=disclosing+genetic+test+results+to+insurer&pbx=1&oq=disclosing+genetic+test+results+to+insurer&aq=f&aqi=&aql=&gs_sm=e&gs_upl=2056l10694l0l10877l42l19l0l15l15l1l355l3191l1.15.2.1l29l0&bav=on.2,or...

Alibabes, Wed Dec 07, 2011 9:50 am
9 weeks to go till I have risk reducing surgery....

Hi, I am scheduled to have a bi-lateral mastechtomy and reconstruction on both breasts on 31st August. The operation will take 9 hours at St Thomas' Hospital. I have loads of questions and I am really scared about how will manage to cope with my feel...

Posted by rachaelr on Tue Jun 28, 2011 11:18 pm with 29 comments

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Hi rachaelr and all you other ladies,it is great to hear some good news as far as mx and recons,i am due to have my risk reducing bilatrel mx with expander surgery two weeks today,,i have been told my surgeon it can be cancelled even up until the last...

nanny4, Tue Nov 22, 2011 4:10 pm
Wondering wether its hereditary at 21

Hi, I am new to this and have only registered today, My name its bexx , I'm 21 from essex, and lost my mother to breast cancer june 2010 , she fought a good 12 year strong battle, and it was so heartbreaking. Mum used to spare me the gory details (th...

Posted by Mumismissed on Sat Nov 19, 2011 5:29 pm with 3 comments

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Hi Bexx It can be a hard situation. However only certain cancers are related to BC, so having cancers in your family wouldn't necessarily make you at higher risk. If mum was diagnosed under age 40 then you would be able to get early screening yourse...

Lulu34, Sun Nov 20, 2011 5:43 pm
unexpected genetic results

Hello eveyone, I haven't posted in a while and did not think I would be back so early...I finished treatment in March this year. Was diagnosed at 34 with TNBC with no family history of any cancer on both sides. I had the usual, 8 chemos, WLE and the...

Posted by fighter34 on Thu Nov 17, 2011 12:56 am with 1 comments

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Hi fighter Sorry you have an inconclusive result. There are hundreds of mutations in the brca 1&2 genes some are pathogenic ie cancer causing, some don't cause cancer and some are called unknown variants and these ones don't have enough info as to w...

Lulu34, Sun Nov 20, 2011 5:22 pm
Genetics testing and results

HI I am new to this site, I had a mastectomy in December and was given radio therapy only, as I was advised I did not need any other form of treatment, was not happy with my hospital treatment/comments/attitudes of the caring nurses and doctors, so ask...

Posted by Lefty on Mon Sep 12, 2011 11:26 pm with 6 comments

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Hi Ladies thanks for all the comments and information, my daughter got tested and the results have come back as her not having the gene, but they are not happy with the results so will be investigating further. With regards the gene coming from my fat...

Lefty, Tue Nov 15, 2011 11:59 pm
What do you think?

Hi All, I hope you don’t mind me asking this but I’m undecided and could do with some advice. My mum died of bc when she was 51 after being first diagnosed at 40. Her sister (62) died recently also of bc and my grandmother died of ovarian cancer, all ...

Posted by Undecided1 on Mon Nov 07, 2011 10:15 pm with 6 comments

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Oops double post!

Lulu34, Tue Nov 08, 2011 11:04 am
BRACA2 MUTATION

My report is back from St Marys and they have found me to be heterozygous for a BRACA2 sequence variant. c.7007+18T>A The report mentions that it has been reported once on the DMuDB as a variant of unknown significance. I am not sure if I should take...

Posted by LancsLass on Thu Oct 27, 2011 6:22 pm with 5 comments

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Hi Lulu My Aunt was on my Mothers side - My Mum is aged 76 years old and very well health wise - she has never had any problems but did have a hysterectomy and one ovary removed when she was about 36 - I am not sure if that has any relevance to her es...

LancsLass, Sat Oct 29, 2011 7:42 pm
tested positive for both BRCA1 and BRCA2 mutations

Hi Ladies, Can anyone shed light while I wait to hear from my genetic counsellor? I have tested positive for both the BRCA1 and the BRCA2 mutations. Does this mean I am more likely to develop breast and ovarian cancer than if I had tested positive for ...

Posted by cannoliwings on Mon Oct 24, 2011 7:36 pm with 4 comments

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so glad it was just brca 1 CW xx LL ill speak more later as off to bed... but not muchg else they can do but if others in your family had bc they can test them for same unknown variant to see if they have it too in most cases they do not but there are...

Lulu34, Thu Oct 27, 2011 2:14 am
Feeling nervous

Well here goes, I have told my two boys about the BRCA1 gene mutation and what to means to us as a family. It went well all things considered. Time has flown by and the date is looming. In fact my surgery has been brought forward by a week and I am due...

Posted by Strawberry Shortcake on Tue Oct 25, 2011 9:42 am with 5 comments

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It's brilliant to hear what it's actually like. I have read all the booklets I have been given and all your stories help to reassure me. I will be having a double mastectomy with immediate reconstruction. I think I am focusing on the anaesthetic rather...

Strawberry Shortcake, Tue Oct 25, 2011 6:58 pm
Just found out I have inherited faulty BRCA 1!

Hi, I am a 36 year old Mum of 2 yong boys (4 &3) and was diagnosed with Grade 2 tnbc (no nodes) in sept 2010. I had neo-adjuvant chemo, WLE and 19 rads which finishied in May. I have now just received the results of my genetic test and found out I have...

Posted by nemo1 on Sat Jul 02, 2011 7:29 pm with 6 comments

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I'm surprised they haven't offered testing to you directly as your own situation regardless of any family history would normally fit the criteria for testing... Under 40 with triple neg. Ovarian cancer is strongly linked with bc so that is quite rele...

Lulu34, Mon Oct 10, 2011 3:13 pm
Docetaxel

Hello everyone, I finished my last chemo at the end of July i had Neoadjuvant Ec Docetaxel, i had 4 Ec which i coped with pretty well but once i was put on Docetaxel things really changed for the worse, as i said i finished at the end of July but the ...

Posted by lolley1209 on Sun Oct 09, 2011 8:11 pm with 1 comments

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Chemo can put you into the menopause and a armful if this can be join aches and pains it usually gets worse just after you finishe Chemo but then should hopefully improve again over the next 6 months or so. Speak to your Bcn sometimes your Onc will opt...

Lulu34, Mon Oct 10, 2011 2:30 am
Called back after a first scan

Hi, just looking for some reassurance I think. I will be going for a second scan after being called back two weeks after my first routine scan. Will be turning 50 in December so have just fallen into the demographic! My mum is 88 and was diagnosed at ...

Posted by littlebad on Sat Oct 08, 2011 11:08 am with 2 comments

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Hi Lynne, thanks for your sensible advise. Unfortunately I won't be able to take anyone with me but will definitely take a list of questions and try and take notes! I'm very philosophical about things and not prone to over dramatising so should be OK ...

littlebad, Sat Oct 08, 2011 3:13 pm

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