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Unacceptable wait for op

I am sooo frustrated and would to know if anyone else has experienced similar. I was diagnosed with high grade DCIS on 7th December - official diagnosis on 13th December. I was told that from the biopsies they were 80% sure it wasn't invasive (which o...

Posted by Lemoncake on Tue Jan 17, 2012 11:23 pm with 28 comments

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Hello Lemoncake I ad a therapeutic mammoplasty on the left where they successfully removed 2.9cm lump and made me smaller on that side. Just means I'll ave to have second op when all this gas finished. I'm also raking Tamoxifen now which apart from ...

Carolyn1709, Thu Feb 09, 2012 6:17 pm
DCIS

Hello everyone, I have just been told that I have DCIS and I am scared. And I don't know what to do, what to ask, where to go.

Posted by Duel on Sat Dec 03, 2011 8:45 pm with 31 comments

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What? an honour!? Paget pair..! I wonder if anyone has pagets on its own without any other form of BC? It's odd that yours so was evident to one person and not to anyone before that?.. But then the surgeon who did my mx called me in early, as soon a...

nonsuch, Thu Feb 09, 2012 2:13 am
Op this Friday

I was dx with high grade DCIS 10mm just before Christmas completely out of the blue. I went as I was uncomfortable under my right arm and they found it in my left breast (someone was definitely looking after me). I am having a wle on Friday, yes Frida...

Posted by minij on Mon Jan 09, 2012 11:08 pm with 9 comments

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Hi Mini, I had wire biop on 12th Dec - re exicion on 13th jan. Showed a little more DCIS so haveing another excision on 14th Feb. Allseems unreal as I feel so perfectly healthy - can't get to grips that there is sumthing not quite right with me. Family...

roxy115, Fri Feb 03, 2012 8:26 pm
a bit of support needed...

Hi All This is my story so far. I went to my doctor after finding a lump and was referred for a mammogram. The lump turned out to be a benign cyst but the mammogram found some calcification in my other breast. They tried to do a biopsy but after seve...

Posted by FROSTY1 on Thu Jan 05, 2012 9:37 pm with 13 comments

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Hi Frosty and all who are at different stages of treatment. I had WLE on the 18th January 2012 and will be having second op on the 8th February. I could really relate to your post as this is exactly how I'm feeling. I'm grateful that it has been dete...

Love11, Mon Jan 30, 2012 7:38 pm
DCIS results

I had a WLE two weeks ago and got my results today, which thankfully were good. The DCIS was completely removed with clear margins, it was contained, so no need for tamoxifen. I am seeing an oncologist next week to see whether she recommends radiothe...

Posted by minij on Tue Jan 24, 2012 8:55 pm with 1 comments

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hi there, not heard about the copy of discussions either, so will be interested to see what posts come back on this issue. best wishes for your appointment next week. TTM xxx

tommyticklemouse, Tue Jan 24, 2012 9:15 pm
A blog post I wrote about DCIS

Hello everyone, Hope you are all well. I wrote a little blog about my DCIS tonight - I've been toying with the idea for ages, and now that my Mastectomy is done, and I feel like the worst is over (touch wood!!) I feel like I'm getting to the place wh...

Posted by snapper on Fri Jan 13, 2012 12:02 am with 8 comments

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Hi Mary have sent you a PM back not sure i have sent it correctly will you let me know . I totally agree about your MX decision i did exactly the same . Love Rachel x

kids2, Thu Jan 19, 2012 11:28 pm
DCIS unknown stage

I am 28 and was diagnosed with dcis 2 days after Christmas. I am 28 yrs old and have been being screened since i was 24. I went for my annual mri, second one ever due to reccomendation from rad because of less radiation. Had an ultrasound guided bx th...

Posted by clsheets on Tue Jan 03, 2012 2:18 am with 2 comments

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Hi, I'm 28 as well and had a mastectomy on my right boob last Thursday. I had a LD flap recon. Its taken a week to feel ok after the anesthetic, I've been sleeping a lot and feeling a bit sick up until today, but I'm moving about ok - but carefully, ...

snapper, Fri Jan 13, 2012 12:07 am
Second WLE or MX?

Hi Am new to this, having being diagnosed with what I think is high grade DCIS in a lump of 1.8cm. This was removed before Christmas, but unfortunately the surgeon didn't get clear margins. He thinks that it wouldn't be necessary to have a mx, but woul...

Posted by Nels on Tue Jan 03, 2012 10:52 am with 19 comments

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Hello Nels Tomorrow I have my last of 15 radiotherapy sessions that followed a lumpectomy for grade 1 DCIS. The radio has been OK for me, having to go each day is a pain but the treatment today is very targeted and the only side effects I have had is...

Fulham, Mon Jan 09, 2012 6:55 pm
Options and recovery times

Hi all. Just been diagnosed with medium grade DCIS following my first routine mammogram. Was told a week ago following the core biopsy and saw my BC last night. Have not cried at all but soooo stressed and constant headaches with all the waiting. Anywa...

Posted by lelly61 on Tue Dec 06, 2011 11:18 pm with 1 comments

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Hi lelly61 My situation was very much the same as yours . I went to the doctor with a cyst in my left breast in July was sent to the breast clinic and after 2 biopsies was told i had medium grade dcis after 2 WLE was told i would have to have MX as the...

kids2, Fri Dec 30, 2011 4:00 pm
Diagnosed with DCIS today

I went to the GP because I was worried about my right breast. She found nothing but referred me to the breast clinic. The doctor there found nothing, but gave me a mammogram (2 years since my last), 3 mammograms, 1 scan and a biopsy later they have d...

Posted by minij on Wed Dec 14, 2011 7:56 pm with 4 comments

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I thought it might be helpful to say that I was diagnosed with DCIS in June 2011. I had a high grade abnormality of 18mm in my left breast. This was identified following a routine mammogram (I am 51). I had a lumpectomy and my specialist offered my t...

Antionette, Fri Dec 30, 2011 2:52 pm
Just diagnosed with DCIS

Following the discovery of a cyst in my right breast I was referred to the hospital by my GP. I had a mammogram and ultrasound and was surprised to discover I had an even larger cyst in my left breast and both were aspirated. Another 11mm lump not pal...

Posted by Love11 on Sat Dec 24, 2011 1:29 am with 2 comments

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Jo thanks for sending me these excellent resources. Really do appreciate it.

Love11, Sat Dec 24, 2011 10:48 am
Virtual hand holding

Hi, not too sure where to start really....still in the "bewildered" stage. Dx 14th Nov with DCIS in one breast and calcium deposits in the other so had lumpectomy in both plus SNB on 8th Dec. I go back for the results in 4 days.....more waiting! C...

Posted by Zax on Tue Dec 13, 2011 1:42 am with 4 comments

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Zax I will also be thinking of you on Fri and hope it all goes well. As already indicated, the feeling of being more in control when you have a plan is what keeps us all going and helps us cope better. As unfair as it is, at least you are getting trea...

lelly61, Tue Dec 13, 2011 2:03 pm
Anyone used manuka honey on newly healed wounds?

Im two weeks post mx and DIEP flap, although my wounds have closed well, I've got some sore pink patches on my long seam, my new boob is hot and pink underneath, and my underarm area is sore and swollen. I've been taking antibiotics for a week but I'm ...

Posted by nonsuch on Thu Dec 08, 2011 11:40 pm with 6 comments

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I was paranoid about getting a hospital-special infection after my mastectomy, and so I rotated three different shower gels during healing, one had betadine, one had chlorhexidine, the third had manuka honey and it all healed really well. Totally scarr...

hymil, Sat Dec 10, 2011 9:48 pm
Just to tell someone...

Hello Everyone On Wednesday I was diagnosed with a high grade DCIS. It was an incidental find - they weren't expecting it. Mum had BC 23 yrs ago and had a MX and being a pessimist, I've always thought in terms of 'when' not 'if.' But on Wed when the...

Posted by White Daisy on Fri Oct 07, 2011 9:51 am with 11 comments

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Hi White Daisy I have just joined this great site and it is so lovely to know that there are so many supportive people out there. I was diagnosed with DCIS possible invasive and high grade on 11th Nov after 1st mammo and my world just crumbled. I am n...

cosmic, Mon Nov 28, 2011 5:58 pm
LCIS....operation number 14!!!

Just back from yet another post operation appointment!! That's 14 operations in 6 years!! So this time no LCIS shown on my hislogy instead it showed dectal ectasia which I know like LCIS is a begnign condition...thank goodness!! So pleased that there w...

Posted by kschil68 on Tue Oct 04, 2011 2:26 pm with 2 comments

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im not quite at your level, but i will have op no 3 on friday 25th nov and this should be my last. third op in 10 weeks as initial removal of idc tumour showed low grade dcis in margin, 2nd wle still had dcis in margin so here i go again!surgeon is run...

carlsberg, Sat Nov 19, 2011 12:25 pm
Tamoxifen

Hi I am 12 months down the line now after mx for DCIS.I have just had a appointment with my oncologist to discuss treatment for reacurrance in the other breast.After doing lots of research on tamoxifen i wanted to know if it would benefit me in taking...

Posted by Suziex on Tue Nov 15, 2011 3:48 pm with 1 comments

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Hi Suzie, I'm surprised that you're being prescribed Tamoxifen if your primary tumour wasn't hormome sensitive. I think I would probably ask for a second opinion or a more comprehensive explanation from your consultant. I have heard in the media latel...

Tiny Tina, Thu Nov 17, 2011 12:47 pm
confused over treatment - need help

Background = hysterectomy in 1995 had to go on HRT, no ovaries. Diagnosed with invasive ductal carconoma .9cm. Biopsy showed spread to lymph nodes. Told to come off HRT. Decided to have full mastectomy as there were signs of cluster of smaller lumps. ...

Posted by wendya on Thu Nov 10, 2011 8:08 pm with 1 comments

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Hi Wendya This is definitely one for your oncologist when you see him/her on Monday. While your cancer is not hormone sensitive, there may be other factors to consider. Good luck. Dx

DJ007, Thu Nov 10, 2011 9:11 pm
DCIS - desicions to make..

Hi everyone. This is my first time posting here. I am 28 and I was diagnosed with DCIS about a month ago. I'm now at the point where I need to decide whether to opt for a lumpectomy w/ radiotherapy, or a masectomy with reconstruction straight after. ...

Posted by snapper on Sat Oct 22, 2011 7:12 pm with 8 comments

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Hey everyone - Thanks so so much for all your comments and advice. I really, really appreciate it! I have gone for the option of the WLE and rads. It was really hard to get there, but I couldnt even really think about the possiblity of masectomy and ...

snapper, Sat Nov 05, 2011 4:13 pm
Does anyone know what a - Q score 7 is on histology report

have just been diagnosed with a high grade DCIS, but infortunately they never got a clear 2mm margin and I have to go in again to have a 1 mm shave, ( I'm in the UK and understand that in the US you work to 1 mm margins) I was told that after this seco...

Posted by marshmallowtea on Thu Nov 03, 2011 9:03 am with 1 comments

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From a quick Google Q score seems to be short for "Quick score" and from what I can see is another measure of oestrogen receptors, from 0-7 where 0-3 is low. Oestrogen is usally scored out of 8 (or % in the US) so I might be wrong but I can only look ...

Alto, Thu Nov 03, 2011 2:35 pm
Suspicious B4 - Inconclusive results

Hello all Just wondered if anyone on here has had inconclusive results after having a mammotome biopsy. When I went to get my results I was told they don't know what it is and graded it a B4, I have since had a wire guided excision biopsy and am awai...

Posted by marshmallowtea on Fri Oct 28, 2011 6:33 pm with 0 comments

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Hello all Just wondered if anyone on here has had inconclusive results after having a mammotome biopsy. When I went to get my results I was told they don't know what it is and graded it a B4, I have since had a wire guided excision biopsy and am awai...

marshmallowtea, Fri Oct 28, 2011 6:33 pm
pain after surgery

I've just been diagnosed with none invasive DCIS I am having a mastectomy on the 29thSept without recon. and wondered how much pain I will be in after the operation also will I be able to wear a bra to come home from hospital

Posted by tilly1 on Sat Sep 17, 2011 4:53 pm with 34 comments

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Hi Jenny61 hope you got on ok with your path results yesterday. Jean x

granny22, Thu Oct 27, 2011 3:50 pm
dcis-treatment

called back from a mammagram in may-core biopsy=dcis diagnosed high grade=wle surgery july 5th-3 weeks rads ended sept 6th(no probs )-took time off work as was very very tired at times-lathered my skin with cream all the time-have read every possible p...

Posted by ethlydsyl on Wed Oct 19, 2011 10:05 pm with 4 comments

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Hello E. I am so really, really pleased for you. I love a happy ending! You are encouragement to us all. The world is yours, grab it with both hands! x

White Daisy, Thu Oct 20, 2011 11:32 pm
Question for Specialist/Experts in Breast Cancer

Hi, I was diagnosed with 'malignant; invasive ductal carcinoma NST + DCIS. Strong positive for oestrogen receptor = 8' at the end of January. I am due to go in for a mastectomy and SNLB next Tuseday, 15th. I have thought about my lifestyle and pas...

Posted by 50Something on Fri Feb 11, 2011 11:39 am with 15 comments

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Hi Ladysue If you email your query to 'Ask the Nurse' our team of specialist nurses will be able to help you with your query, you can follow this link: http://www.breastcancercare.org.uk/breast-cancer-services/ask-us-your-questions/ask-nurse Best wi...

Lucy BCC, Wed Oct 19, 2011 9:55 am
Making treatment choices

Posted on behalf of new user chris i have just been diagnosed with DCIS. i've had an initial consultatiuon with a surgeon and my options will be; lumpectomy with radiotherapy, but only if its only in the initial area only, which the consultant doesn't...

Posted by janet(BCC) on Sun Mar 20, 2011 5:06 pm with 5 comments

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Hi Janette, My situation was different from yours, but I am one of many many women who have had a mastectomy with immediate reconstruction and then go on to have radiotherpay quite safely and effectively (so far as I can tell this far). Some surgeons ...

RevCat, Sat Sep 24, 2011 8:34 am
No progress

Hello to anyone. Eight days ago I was told I had DCIS and that I would need a mastectomy. Despite my notes haveing been faxed to my local hospital and several fruitless phone calls I still have to hear anything about future treatment. I JUST FEEL BAD.

Posted by lilasdeprovence on Wed Sep 14, 2011 1:56 pm with 8 comments

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No not offered tamoxifen and he said chances were slim, that I would be really unlucky and statistically was in the same boat as everyone else. Wish I had have pushed harder for second mx at the time but hindsight is a wonderful thing!This time round i...

daffodil3969, Fri Sep 23, 2011 5:55 pm

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